Neuroendocrine Tumors (NETs) Support Group

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Comment

Does anyone but me have fluctuating high Chromogranin-A levels and normal HIAA-5 and Gallium scan results?...

https://connect.mayoclinic.org/comment/622607/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2021

Comment

I am 65 years old. Sure sounds like you've been through a lot. I was taken...

https://connect.mayoclinic.org/comment/1078563/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 31, 2024

Comment

Thank you! Sorry for my english, I am spanish. Can I ask you how old were...

https://connect.mayoclinic.org/comment/1054503/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....

https://connect.mayoclinic.org/comment/1015601/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Comment

Hello @emilyliz16 and welcome to Mayo Connect. Yes, a high Chromogramin level can be caused by...

https://connect.mayoclinic.org/comment/966652/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2023

Comment

You are right, @terryrandy5. The Chromogranin A results can be impacted by other meds, such as...

https://connect.mayoclinic.org/comment/930478/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

Comment

I'm 53 and have already had 2 parathyroid adenomas removed. Had on-again-off-again high gastrin (could be...

https://connect.mayoclinic.org/comment/888107/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

Comment

The doctor says the high chronogrininA means nothing but he ordered a PET Scan to be...

https://connect.mayoclinic.org/comment/883787/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Hi @peg152 It will be good for you to see a doctor who can look more...

https://connect.mayoclinic.org/comment/882407/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Comment

Following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1, 2022 I...

https://connect.mayoclinic.org/comment/874619/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

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