Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....

https://connect.mayoclinic.org/comment/1015601/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Comment

Hello @emilyliz16 and welcome to Mayo Connect. Yes, a high Chromogramin level can be caused by...

https://connect.mayoclinic.org/comment/966652/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2023

Comment

You are right, @terryrandy5. The Chromogranin A results can be impacted by other meds, such as...

https://connect.mayoclinic.org/comment/930478/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

Comment

I'm 53 and have already had 2 parathyroid adenomas removed. Had on-again-off-again high gastrin (could be...

https://connect.mayoclinic.org/comment/888107/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 1, 2023

Comment

The doctor says the high chronogrininA means nothing but he ordered a PET Scan to be...

https://connect.mayoclinic.org/comment/883787/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Hi @peg152 It will be good for you to see a doctor who can look more...

https://connect.mayoclinic.org/comment/882407/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2023

Comment

Following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1, 2022 I...

https://connect.mayoclinic.org/comment/874619/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2023

Comment

If you don't mind sharing, how did you get your doctors to look for the mass...

https://connect.mayoclinic.org/comment/872269/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Jun 4, 2023

Comment

I had a follow up with the Oncologist earlier this week. I inquired about a NET...

https://connect.mayoclinic.org/comment/835888/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

@emma0444 I have copied our pathology report below for you. This is after surgery, after 9...

https://connect.mayoclinic.org/comment/835216/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

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