Neuroendocrine Tumors (NETs) Support Group

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214 total results

Comment

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

Comment

Hello @fraaseo and welcome to the NETs support group on Mayo Connect. On Connect, there are...

https://connect.mayoclinic.org/comment/1269770/

Discussion: Has anyone had the peritoneal stripping surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2025

Comment

Thank you for your post. I have small bowel primary NETs with liver met only diagnosed...

https://connect.mayoclinic.org/comment/786233/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

We sound very similar. Small bowel primary, mesenteric mass with resection in 2022. I have a...

https://connect.mayoclinic.org/comment/1218822/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2025

Comment

Hello @jillyg I'm glad that you found this discussion group. I am sorry to hear of...

https://connect.mayoclinic.org/comment/1403281/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Sep 28, 2025

Comment

Did your endoscopy include a a biopsy that confirmed your NETs diagnosis? Somatuline Depot (Lanreotide) can...

https://connect.mayoclinic.org/comment/1495835/

Discussion: Someone can help?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 4:56pm

Comment

Hi, Hopeful--yes, you have that right, my tumors were never caught by colonoscopy, upper endoscopy, CT...

https://connect.mayoclinic.org/comment/127208/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Comment

Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...

https://connect.mayoclinic.org/comment/1284362/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2025

Comment

I had a small bowel resection & removal of 4 of 24 lymph nodes that had...

https://connect.mayoclinic.org/comment/1370892/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2025

Comment

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2025

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