Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @cmc188 and welcome to Connect. I would like to introduce you to @californiazebra and @triveraderubio,...

https://connect.mayoclinic.org/comment/1199781/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2024

Comment

I’ve been taking octreotide injections for DIPNECH and lung NETs for 4 years. No GI issues...

https://connect.mayoclinic.org/comment/1199060/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

Comment

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in...

https://connect.mayoclinic.org/comment/1198235/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

@rachismarie Sorry to hear about all you’re going thru. I understand how scary it can all...

https://connect.mayoclinic.org/comment/1181823/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

Hi @splendrous 2008-2010: they didn't know what the 50+ nodules were, benign or cancer, so many...

https://connect.mayoclinic.org/comment/1179339/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Comment

As a GI nurse for 32 years, now retired. I can honestly say that no amount...

https://connect.mayoclinic.org/comment/1175814/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 18, 2024

Comment

Hopefully there is someone out there still monitoring this. I have chronic NET that started in...

https://connect.mayoclinic.org/comment/1171106/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Comment

@sophiarose I’ve been taking octreotide injections for lung NETs and DIPNECH for 3.5 years and it...

https://connect.mayoclinic.org/comment/1181820/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

Hello @breck and welcome to Mayo Connect. I see that this is your first post and...

https://connect.mayoclinic.org/comment/1169567/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

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