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622 total results
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Discussions (53)
Comments (569)
Comment
If the injection is Lanreotide every 28! I did 3 injections and had to switch to...
https://connect.mayoclinic.org/comment/1197109/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 25, 2024
Comment
Thank you very much! Well it was partial resection around 50 cm with ileocecal valve. I...
https://connect.mayoclinic.org/comment/1194019/
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Discussion:
Still have symptoms after surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 20, 2024
Comment
I have had Scans read wrong I think private places don’t really know what they are...
https://connect.mayoclinic.org/comment/1184710/
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Discussion:
What causes differences in reading of CAT Scan and MRI imaging?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 5, 2024
Comment
The treatments are induced by IV, it takes about 5 hours total. Starts with an amino...
https://connect.mayoclinic.org/comment/1283718/
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Discussion:
NET in jejunum spread to liver: Treatment options?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 17 5:27am
Comment
PRRT ( peptide receptor radionuclide therapy) is a radiation treatment.. I was on Ocreotide injections for...
https://connect.mayoclinic.org/comment/1258508/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 15 10:34am
Comment
All forms of nets are still pretty rare but more cases are being diagnosed all the...
https://connect.mayoclinic.org/comment/1296399/
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Discussion:
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 4 11:08am
Comment
After being on Ocreotide for almost 2 years a few of my tumors were still growing,...
https://connect.mayoclinic.org/comment/1346238/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 12 5:07am
Comment
I do not have a stent, the PRRT treatment I received was called Lutathera, all 4...
https://connect.mayoclinic.org/comment/1313017/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26 6:22am
Comment
Funny story went to the hospital years ago and they never found anything other than an...
https://connect.mayoclinic.org/comment/1047775/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 9, 2024
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