Neuroendocrine Tumors (NETs) Support Group

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Comment

Reaching to to anyone taking Ocreotide In October I finished my 4th and last PRRT treatment...

https://connect.mayoclinic.org/comment/1181602/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

I’ve been on Ocreotide for18 months now and have not had that experience with the injections..

https://connect.mayoclinic.org/comment/1206930/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 1:56pm

Comment

I have been having the monthly injections of Octreatide. (Sp?) for about a year. It also...

https://connect.mayoclinic.org/comment/1303282/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 11:16am

Comment

We got an appointment for second opinion. Two days before we consulted with doctor that was...

https://connect.mayoclinic.org/comment/1160931/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

Comment

My condition is similar stage 4 due to it metastasizing to the liver, origin is the...

https://connect.mayoclinic.org/comment/1106025/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

Comment

I also take ocreotide injections monthly. I’m usually tired for 2 days after each shot. But...

https://connect.mayoclinic.org/comment/1100384/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 6, 2024

Comment

His last treatment is in Dec. The scan won't be don't until next year sometime. Possibly...

https://connect.mayoclinic.org/comment/900285/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2023

Comment

@sophiarose, were you able to discuss stopping and/or restarting Ocreotide with your oncologist? What did you...

https://connect.mayoclinic.org/comment/836317/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2023

Comment

I have NET metastasis liver cancer I have been told by 3 drs that they don’t...

https://connect.mayoclinic.org/comment/835279/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

Comment

Hello @elkeann and welcome to the NETs discussion on Mayo Connect. Facial flushing is often a...

https://connect.mayoclinic.org/comment/802512/

Discussion: Neck and face red flushing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

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