Neuroendocrine Tumors (NETs) Support Group

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You've been diagnosed with Neuroendocrine cancer? Symptoms? How was this discovered? Maybe you are needing a...

https://connect.mayoclinic.org/comment/1370852/

Discussion: Surgery on Small Intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2025

Comment

Thanks for the feedback firepower. I also have grade 3 Ki67 of 42 and am looking...

https://connect.mayoclinic.org/comment/828496/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2023

Comment

Good to see you, @cu2. You might find some helpful post in this related discussion: -...

https://connect.mayoclinic.org/comment/1271252/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

Comment

Hello @cu2, I have had two resections of the duodenal bulb. The carcinoids were small. Do...

https://connect.mayoclinic.org/comment/1271143/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2025

Comment

I had surgery at Mayo Clinic in Rochester, MN in 2016. 3 feet small bowel, 12...

https://connect.mayoclinic.org/comment/102048/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2019

Comment

I was diagnosed with NET’s starting in small bowel and metastasized to liver, I’ve been on...

https://connect.mayoclinic.org/comment/1283550/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 16, 2025

Comment

had portion of small bowel removed here in north carolina but , NET are still in...

https://connect.mayoclinic.org/comment/176725/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2019

Comment

Yes i had small bowel surgery 10 days back.. currently m recovering for chemo..i lost 12...

https://connect.mayoclinic.org/comment/786385/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 18, 2022

Comment

Thank you all for your input of PRRT experiences. 10/1 I receive 3rd infusion of Lutathera...

https://connect.mayoclinic.org/comment/1143557/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2024

Comment

Hi Teresa, I had been having MRI scans every 4-6 months after removal of the primary...

https://connect.mayoclinic.org/comment/801786/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26, 2023

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