Support Groups

Neuroendocrine Tumors (NETs) Support Group

Lock icon Public Support Group
583 total results
Discussion
68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...
Last active: Feb 1 1:21pm
Discussion
Spreading NET
Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...
Last active: Aug 6 7:30pm
Discussion
Anyone with an insulinoma have only therapies instead of surgery?
I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...
Last active: Aug 14, 2023
Discussion
Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...
Last active: Mar 25, 2024
Discussion
Everolimus side effects
I was told yesterday that my NET has spread to my spine L1 and my periportal lymph node I did Lanreotide and Ocreotide injections for...
Last active: Oct 27, 2023
Discussion
Who is on PRRT (peptide receptor radionuclide therapy)?
I would like to know who are using these processes and how they are working. I have a carcinoid tumor in my mesentery inoperableand i...
Last active: May 13 12:07pm
Discussion
Neuroendocrine cells in Breast and Lungs DIPNECH
I was diagnosed with DIPNECH at National Jewish Health 3/23. Two months later, I had a lumpectomy on my breast. The pathology came back with...
Last active: Sep 16, 2024