624 total results
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It sounds like the Octreotide therapy works for you. Was there any surgery done before the...
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There is a new oral version of octreotide that is used to control carcinoid syndrome. Perhaps...
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Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....
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Do you take lanreotide or octreotide injections? If so do I have side effects? Thanks! Marcia
Discussion
New and concerned about my wife.
Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...
Discussion
4 treatment options from my doctor, which one should I start with?
Here is the summary of my situation. I am 63 years man with a history of a chest mass in 2019 found to be a...
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Deciding on best procedure: Your thoughts?
I am going to have to seek a treatment; what do you suggest1tumor.I have a carcinoid tumor in the Centrist part of my body and...
Discussion
Everolimus for multiple Neuroendocrine tumors
I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...
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Update: Lutethera treatment is over
Hi all, just wanted to check in with an update for everyone. Sorry it has taken some time, treatments, vacation, holidays and sickness have all...
Discussion
PNET on tail of pancreas with numerous bilobar hepatic metastases
After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...
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68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic
@amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 @junebug15 @tomewilsonThis article regarding 68Ga DOTATATE Positron Emission Tomography...
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Anyone with an insulinoma have only therapies instead of surgery?
I really recently got diagnosed with malignant insulinoma. About a year ago I collapsed at home and paramedics took me to the hospital (small town...
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Spreading NET
Just a up date on my journey of net been on my shots octretide for two yrs. had four treatment of prrt, not going very...
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Treatment for GI NET with liver mets not working: Options?
had a tumor removed from small intestine 5/2022.that metastasis to the liver started octretide shots every 28 days,shots did not work very well with the...