Skip to Content
Connect
Sign In
Join
Home
Support Groups
Blogs & Podcasts
Events
Members
Help Center
Support Groups
Neuroendocrine Tumors (NETs) Support Group
Public Support Group
Follow for updates
Copy link to clipboard
Discussions
Members
More
×
Select a Tab
Members
Search discussions
Start a new discussion
plus
296 total results
All
Discussions (28)
Comments (268)
Comment
They are flushing versus hot flashes. Flushing just turns you red, but you do not sweat....
https://connect.mayoclinic.org/comment/1203269/
Copy link to clipboard
Discussion:
What does my dentist need to know about my NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 6 days ago
Comment
This is my 6 years trying to get information for having Neuroendocrine Cancer, lung Nets! I...
https://connect.mayoclinic.org/comment/1203278/
Copy link to clipboard
Discussion:
What does my dentist need to know about my NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 6 days ago
Comment
Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...
https://connect.mayoclinic.org/comment/1198299/
Copy link to clipboard
Discussion:
Any advice for someone recently diagnosed with NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 27, 2024
Comment
Thank you for responding. I had no symptoms. But I had a positive colo-guard. Then I...
https://connect.mayoclinic.org/comment/1194306/
Copy link to clipboard
Discussion:
Is there anything I can do for the bloating?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 20, 2024
Comment
There are only about 300 documented cases of DIPNECH which is why most doctors have never...
https://connect.mayoclinic.org/comment/1205680/
Copy link to clipboard
Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 3 days ago
Comment
Hi @cmc188 I have 50+ lung NETs tumors across both lungs. I also have DIPNECH (really...
https://connect.mayoclinic.org/comment/1199984/
Copy link to clipboard
Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 29, 2024
Comment
My fiance was diagnosed with NETs in Sept of this year after 3 ED visits with...
https://connect.mayoclinic.org/comment/1197766/
Copy link to clipboard
Discussion:
Anyone have a neuroendocrine tumor (NET) in the spine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 27, 2024
Comment
I have been taking octreotide injections for 4 years for lung NETs and have not had...
https://connect.mayoclinic.org/comment/1207164/
Copy link to clipboard
Discussion:
Clay colored bowels & diarrhea side effects with Octreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 1 day ago
Comment
I have Lungs NETS in both lungs. Recent growth, small amount now diagnosed with DIPNECH. I...
https://connect.mayoclinic.org/comment/1205143/
Copy link to clipboard
Discussion:
Concerns after lobectomy for carcinoid tumor in lung
Support Group:
Lung Cancer
Posted: 3 days ago
Comment
It is interesting, isn’t it? However, I didn’t have those allergy symptoms like sneezing, etc. several...
https://connect.mayoclinic.org/comment/1205467/
Copy link to clipboard
Discussion:
Typical Carcinoid Tumor in Lungs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 3 days ago
First
Previous
...
2
3
4
5
6
7
8
...
Next
Last
×
Start a discussion
Please
sign in
or
register
to start a discussion.
Connect
Join Mayo Clinic Connect
Connect with thousands of patients and caregivers for support and answers.
Hosted and moderated by Mayo Clinic.
Safe and secure.
Connect
Public Support Group 
Connect