Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @josey1 Sorry about all that you are going through. I have both DIPNECH and typical...

https://connect.mayoclinic.org/comment/906758/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

Comment

Seeing Oncologist on Tuesday CT showed a 10mm at my thyroid, First lung tumor removed (NET)...

https://connect.mayoclinic.org/comment/1316439/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30 10:13am

Comment

My tumors (lungs) were first noted in 2016 and as goes with NETS there is little...

https://connect.mayoclinic.org/comment/1318000/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1 2:01pm

Comment

Hello @spaztwobe and welcome to the NETs support group. I see that @dbamos1945 and @tstern7 have...

https://connect.mayoclinic.org/comment/1315211/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 6:14pm

Comment

@spaztwobe I feel your frustration. It took 12 years to correctly diagnose my lung NETs and...

https://connect.mayoclinic.org/comment/1315349/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 11:06pm

Comment

Hello @onesillyrn and welcome to the NETs support group on Mayo Connect. From what you have...

https://connect.mayoclinic.org/comment/1317704/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1 7:31am

Comment

@lkent Can I ask how large your NETs tumors are? Why another biopsy if you were...

https://connect.mayoclinic.org/comment/1318269/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Comment

I had a large one in my left lower lobe. Almost 2cm and they weren't sure...

https://connect.mayoclinic.org/comment/1318419/

Discussion: Diagnosis Difficulties

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Comment

Hello @1peg and welcome to the NETs support group on Mayo Connect. Connect is a good...

https://connect.mayoclinic.org/comment/1262844/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 3:52pm

Comment

Hello, @aliciabusiness5, and welcome to Mayo Connect. I you are dealing with lung NETs as well...

https://connect.mayoclinic.org/comment/1266869/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 8:47pm

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