Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

676 total results

Comment

Hi Teresa, Hubs is currently stable. His treatment is the Sandostatin/Octreotide. It appears that when his...

https://connect.mayoclinic.org/comment/1270087/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30, 2025

Comment

I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...

https://connect.mayoclinic.org/comment/1117054/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2024

Comment

Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...

https://connect.mayoclinic.org/comment/782928/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

Comment

I am hoping someone on this site has a glucagonoma and their experience, please respond. 1...

https://connect.mayoclinic.org/comment/1350572/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...

https://connect.mayoclinic.org/comment/830736/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2023

Comment

Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...

https://connect.mayoclinic.org/comment/885814/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

In reply to your questions, I had breast cancer 9 years ago, so periodically have scans...

https://connect.mayoclinic.org/comment/1167626/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2024

Comment

Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....

https://connect.mayoclinic.org/comment/1015601/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2024

Comment

Hi there! Your diet doesn't sound dull to me at all! I believe this diet or...

https://connect.mayoclinic.org/comment/856433/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

This site is new to me. I was diagnosed with NET and Carcinoid Syndrome in 2013....

https://connect.mayoclinic.org/comment/849237/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Digestive Health

Follow

18088

15 minutes ago

Visiting Mayo Clinic

Follow

6670

37 minutes ago

Pancreatic Cancer

Follow

3508

47 minutes ago

Follow

8071

52 minutes ago

Cancer: Managing Symptoms

Follow

5551

1 hour ago