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Discussions (47)
Comments (536)
Comment
@gaylejean That is an interesting approach, thanks for sharing your doctor's opinion. It might still be...
https://connect.mayoclinic.org/comment/137548/
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Discussion:
My Husband was newly diagnosed with Carcinoid Cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 31, 2017
Comment
Definitely identify with the private moments of emotions. My wife is a natural born worrier.. She...
https://connect.mayoclinic.org/comment/1192097/
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Discussion:
Living with Neuroendocrine NETS, any advice?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 17, 2024
Comment
My treatments were different I had 4 and they were 8 weeks apart Except for after...
https://connect.mayoclinic.org/comment/1312828/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 25 6:40pm
Comment
Thank you My worst side effects are total exhaustion massive headache and diarrhea The more minimal...
https://connect.mayoclinic.org/comment/1313479/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 26 3:32pm
Comment
Are you getting monthly injections? I started with Lanreotide, that didn’t help the flushing, I was...
https://connect.mayoclinic.org/comment/1208804/
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Discussion:
I am one year out with my diagnosis just finished 4th round of PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 11 7:25am
Comment
They call the disease Zebras because no 2 are the same I never had a hot...
https://connect.mayoclinic.org/comment/1196548/
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Discussion:
What does my dentist need to know about my NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 24, 2024
Comment
I’ve been on Ocreotide for about 18 months it has worked great on the hot flashes,...
https://connect.mayoclinic.org/comment/1194070/
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Discussion:
Still have symptoms after surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 20, 2024
Comment
My tumors are not in my lungs but in response to the flushing, I experienced flushing...
https://connect.mayoclinic.org/comment/1107435/
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Discussion:
Sarcoidosis and Lung NET, upcoming surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 18, 2024
Comment
I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...
https://connect.mayoclinic.org/comment/1035643/
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Discussion:
What questions should I ask oncologist tumor types and chemo treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 18, 2024
Comment
The carcinoid heart disease caused a lot of swelling to the point it was putting pressure...
https://connect.mayoclinic.org/comment/911346/
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Discussion:
Has anyone had NETs metastasized to heart?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 11, 2023
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