Neuroendocrine Tumors (NETs) Support Group

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Comment

I was diagnosed 2 years ago, with stage 4 ,started in my lower intestines and metastasized...

https://connect.mayoclinic.org/comment/1202170/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 7:17am

Comment

Take a deep breath. There are lots of treatments for this cancer. I also have a...

https://connect.mayoclinic.org/comment/1219584/

Discussion: PNETs: What comes first? Surgery or try to shrink tumor with chemo?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 9:27am

Comment

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...

https://connect.mayoclinic.org/comment/1162526/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

Comment

I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...

https://connect.mayoclinic.org/comment/1147007/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2024

Comment

I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...

https://connect.mayoclinic.org/comment/1112552/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

Comment

My tumors started in the small intestine and metastasized to the liver before I was diagnosed....

https://connect.mayoclinic.org/comment/1072655/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Comment

What I do know is that when I had my liver resection 4 years ago they...

https://connect.mayoclinic.org/comment/994210/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9, 2024

Comment

Thank you I did Lanreotide had bad side effects had to stop I was ok on...

https://connect.mayoclinic.org/comment/830413/

Discussion: Stopping Octreotide???

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Comment

Thanks! @hopeful33250 those articles are helpful! I’m a caregiver. My mom was diagnosed with NETs (Primary...

https://connect.mayoclinic.org/comment/311779/

Discussion: Afinitor - Anyone have pneumonitis as a side effect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2020

Comment

Yes, to the point I am surprised I don't glow. :) I have had multiple Pituitary...

https://connect.mayoclinic.org/comment/186233/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 24, 2018

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