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583 total results
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Discussions (47)
Comments (536)
Comment
Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...
https://connect.mayoclinic.org/comment/857723/
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Discussion:
4 treatment options from my doctor, which one should I start with?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 10, 2023
Comment
Good morning!!! As I mentioned above, I was diagnosed January 2020, grade 3 (Ki67 17-29 depending...
https://connect.mayoclinic.org/comment/1247365/
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Discussion:
Anyone have experience with cabozantinib (Cabometyx)?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 28 12:10pm
Comment
After a lot of tests, scans and different doctors over the course of the last year,...
https://connect.mayoclinic.org/comment/912620/
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Discussion:
Anyone with an insulinoma have only therapies instead of surgery?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 14, 2023
Comment
Hi. Good to hear from you. I will try to help. What I have done has...
https://connect.mayoclinic.org/comment/776368/
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Discussion:
Prognosis for Metastasized NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 22, 2022
Comment
Yes, I have had a significant increase in fatty liver over the course of a year...
https://connect.mayoclinic.org/comment/1376841/
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Discussion:
Neuroendocrine Tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 4 days ago
Comment
I just completed my last PRRT (Lutathera)treatment in May, I had a scan before my third...
https://connect.mayoclinic.org/comment/1324144/
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Discussion:
Advice for Preparations and Expectations on starting PRRT?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 10 9:03am
Comment
Hello, I was diagnosed about 2 1/2 years ago, primary tumor was identified in the small...
https://connect.mayoclinic.org/comment/1317375/
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Discussion:
Neuroendocrine Carcinoma with Liver Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 31 2:20pm
Comment
I'm so sorry you're in this club but its great that you're seeking out answers. I...
https://connect.mayoclinic.org/comment/1356211/
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Discussion:
My journey to here...
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 25 1:35pm
Comment
I had two lantreotide shots. They controlled my hot flashes and made me feel human but...
https://connect.mayoclinic.org/comment/1347584/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 13 8:09pm
Comment
After being on Ocreotide for almost 2 years a few of my tumors were still growing,...
https://connect.mayoclinic.org/comment/1346238/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 12 5:07am
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