Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

676 total results

Comment

Bob, To provide some additional information. . . I have had 2 surgeries - a modified...

https://connect.mayoclinic.org/comment/806975/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Comment

@splendrous, thanks for sharing your source of the second paragraph. I appreciate that you shared your...

https://connect.mayoclinic.org/comment/1346810/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12, 2025

Comment

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

Comment

A quick update for the group as I don't think I have posted one in a...

https://connect.mayoclinic.org/comment/134732/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2021

Comment

@tomrennie Thank you for your input. Typical (grade 1) and atypical (grade 2) classifications are specific...

https://connect.mayoclinic.org/comment/1430349/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2025

Comment

Followup answer: My invasive surgery (I’m a relatively healthy 80 year old man) was for a...

https://connect.mayoclinic.org/comment/783340/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2022

Comment

Hello @sweet63, Oh, I can so understand your concern! So many of us with a NET...

https://connect.mayoclinic.org/comment/776832/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

Comment

Hi @mir123 Thanks for sharing your info. I understand there is little historical info to go...

https://connect.mayoclinic.org/comment/909352/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2023

Comment

Hi @pammy229 I’m glad you decided to go to Mayo and will undoubtedly be hooked up...

https://connect.mayoclinic.org/comment/1198299/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I am 69 years old and am diagnosed with multiple liver metastasis from lung carcinoid tumor....

https://connect.mayoclinic.org/comment/825019/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12, 2023

Pancreatic Cancer

Follow

3503

16 minutes ago

Digestive Health

Follow

18080

50 minutes ago

Follow

8065

52 minutes ago

Visiting Mayo Clinic

Follow

6667

3 hours ago

Follow

1852

4 hours ago