Neuroendocrine Tumors (NETs) Support Group

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Comment

@lkent Can I ask how large your NETs tumors are? Why another biopsy if you were...

https://connect.mayoclinic.org/comment/1318269/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2025

Comment

Hello @onesillyrn and welcome to the NETs support group on Mayo Connect. From what you have...

https://connect.mayoclinic.org/comment/1317704/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2025

Comment

Hello @spaztwobe and welcome to the NETs support group. I see that @dbamos1945 and @tstern7 have...

https://connect.mayoclinic.org/comment/1315211/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2025

Comment

Hello @ds231 and @sammydj and welcome to the NETs support group on Mayo Connect. I am...

https://connect.mayoclinic.org/comment/1289819/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2025

Comment

I have neuroendocrine lung cancer stage 4, grade 1. Liver and bone nets. I've gotten good...

https://connect.mayoclinic.org/comment/1227132/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2025

Comment

Hello I have a couple of NETs tumors. One in the lung one in the mediastinum....

https://connect.mayoclinic.org/comment/1198328/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

No wheezing or shortness of breath, however I had coughed up blood maybe 4 times in...

https://connect.mayoclinic.org/comment/1198235/

Discussion: Any advice for someone recently diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

Hi @donnapeck51 I’m sorry to hear about your Merkel cell carcinoma. I’m not a doctor but...

https://connect.mayoclinic.org/comment/1172492/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2024

Comment

Thank you for reply, I don't have a net's team, I rely on my thoracic surgeon...

https://connect.mayoclinic.org/comment/1142739/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

Comment

Good to know. Just frustrating that no one ever suggested the SOB on exertion was related...

https://connect.mayoclinic.org/comment/1108851/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2024

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