Neuroendocrine Tumors (NETs) Support Group

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Comment

Talkativeinfl, first of all, I’m so very sorry to hear about your husband’s situation and your...

https://connect.mayoclinic.org/comment/873777/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

Comment

He was diagnosed in December 2019, had surgery in March 2020, I think the first six...

https://connect.mayoclinic.org/comment/899229/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

Comment

Hi @splendrous 2008-2010: they didn't know what the 50+ nodules were, benign or cancer, so many...

https://connect.mayoclinic.org/comment/1179339/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2024

Comment

I can relate to a little of this, Jenchaney -- I am a multifocal SiNET patient...

https://connect.mayoclinic.org/comment/135487/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2017

Comment

Hi Teresa: I would be glad to share my journey with you and your followers. In...

https://connect.mayoclinic.org/comment/107245/

Discussion: Ga-68 for detecting NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2017

Comment

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

My husband’s journey started In 2015 with stomach pains nothing diagnosed. Then in 2019 he was...

https://connect.mayoclinic.org/comment/1121892/

Discussion: Pancreastatin level at 1500

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 11, 2024

Comment

Thank you and congratulations on living with this monster. I am USUALLY an upbeat optimistic person...

https://connect.mayoclinic.org/comment/881074/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

@mcohan Most doctors, even radiologists, pulmonologists and oncologists haven't even heard of DIPNECH. I recently went...

https://connect.mayoclinic.org/comment/965599/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

Comment

Here is my diet which covers almost every day of the year. Breakfast---a cup of coffee...

https://connect.mayoclinic.org/comment/856388/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

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