Neuroendocrine Tumors (NETs) Support Group

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Comment

In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...

https://connect.mayoclinic.org/comment/896094/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Comment

Might I suggest you get a 2nd opinion? It's just a thought. Also, possibly speak with...

https://connect.mayoclinic.org/comment/1072193/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2024

Comment

That’s exactly what happened to me in 2022; had every imaginable test possible & last test...

https://connect.mayoclinic.org/comment/1348205/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2025

Comment

Yes I have had one discovered about two years ago with a heart MRI. It was...

https://connect.mayoclinic.org/comment/907604/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2023

Comment

Hi I am so sorry to hear of your situation I had primary NET liver cancer...

https://connect.mayoclinic.org/comment/776351/

Discussion: Does sandostatin work?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Comment

Was it a PET Dotatate scan he had? That's the one my Doc uses to find...

https://connect.mayoclinic.org/comment/1248357/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2025

Comment

Good morning, My NET is Pancreas to Liver also to numerous to operate, some were over...

https://connect.mayoclinic.org/comment/913398/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Comment

Hello, My name is Ristene and I was diagnosed with a glomus jugular paraganglioma on 1/10/19....

https://connect.mayoclinic.org/comment/244178/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2019

Comment

My husband was diagnosed with GITract small bowel Neuroendocrine tumor Stage 4 Grade 2 well-differentiated KY...

https://connect.mayoclinic.org/comment/1120029/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2024

Comment

It great your doctor reviewed the options you have, but the doctor wants you to choose?...

https://connect.mayoclinic.org/comment/899570/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

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