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Discussions (47)
Comments (536)
Comment
I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...
https://connect.mayoclinic.org/comment/1117054/
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Discussion:
Everolimus for multiple Neuroendocrine tumors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 3, 2024
Comment
mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...
https://connect.mayoclinic.org/comment/830736/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 23, 2023
Comment
Hi, in case it's of interest, the following describes my recent NET experience. Following a blockage,...
https://connect.mayoclinic.org/comment/782928/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 9, 2022
Comment
In reply to your questions, I had breast cancer 9 years ago, so periodically have scans...
https://connect.mayoclinic.org/comment/1167626/
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Discussion:
Dotatate lights only in liver, but report says metastatic to liver?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 3, 2024
Comment
Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...
https://connect.mayoclinic.org/comment/885814/
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Discussion:
NETs: Scheduled for small intestine resection: What to expect?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
We did find this out that there is extra help for Medicare patients with the drug...
https://connect.mayoclinic.org/comment/1135041/
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Discussion:
Short acting Ocreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 2, 2024
Comment
Hi jestjohn, I’d be interested to know the results of your Dec. 15, 2023 PET scan....
https://connect.mayoclinic.org/comment/1015601/
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Discussion:
Anyone have a neuroendocrine tumor in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 14, 2024
Comment
Hi there! Your diet doesn't sound dull to me at all! I believe this diet or...
https://connect.mayoclinic.org/comment/856433/
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Discussion:
Just diagnosed: Metastatic NETs. Treatment?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 8, 2023
Comment
This site is new to me. I was diagnosed with NET and Carcinoid Syndrome in 2013....
https://connect.mayoclinic.org/comment/849237/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25, 2023
Comment
Nana120, welcome to the Mayo Connect online support group for Neuroendocrine tumor patients. I hope you’ll...
https://connect.mayoclinic.org/comment/898735/
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Discussion:
First Lanreotide Injection: Any tips about diet and side effects?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 19, 2023
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