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Discussions (47)
Comments (536)
Comment
We been missing in action due to more hospitalizations. We did just get a bit of...
https://connect.mayoclinic.org/comment/1329420/
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Discussion:
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 17 5:59pm
Comment
Hi, I was diagnosed 8-7-23 with NET of the small intestines. I am a Grade 2...
https://connect.mayoclinic.org/comment/1015199/
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Discussion:
Anyone have a neuroendocrine tumor in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2024
Comment
@gmapam Your NETs oncology team should be able to tell you. You need to have somatostatin...
https://connect.mayoclinic.org/comment/912394/
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Discussion:
How do I know somatostatin is in my system?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 13, 2023
Comment
Hello, In May '22, after surgery to remove a tumor in my right lung and a...
https://connect.mayoclinic.org/comment/823582/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 9, 2023
Comment
Hi @bcraft. I'm new to this site too and what brought me here was a search...
https://connect.mayoclinic.org/comment/838450/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 5, 2023
Comment
Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...
https://connect.mayoclinic.org/comment/1054944/
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Discussion:
NET not found on PET/CT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 21, 2024
Comment
I had surgery in 2016 (8-years ago) to remove tumor / mass at appendix and five...
https://connect.mayoclinic.org/comment/1142526/
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Discussion:
Diet restrictions with Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 16, 2024
Comment
When I was diagnosed that my NET had come back 2 1/2 years after my liver...
https://connect.mayoclinic.org/comment/822159/
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Discussion:
Stage 4 Carcinoid tumor: What treatments have you had?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 7, 2023
Comment
Hi Theresa, My dietary journey with this disease has been long and troublesome, so I will...
https://connect.mayoclinic.org/comment/673106/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 20, 2022
Comment
Hi Teresa, Hubs is currently stable. His treatment is the Sandostatin/Octreotide. It appears that when his...
https://connect.mayoclinic.org/comment/1270087/
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Discussion:
New Diagnosis: husband's labs are all indicating NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 30 11:31am
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