Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

676 total results

Comment

Hi I was diagnosed last July with an insulinoma,tumor in my pancreas and liver lesions. I...

https://connect.mayoclinic.org/comment/831185/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

Splendrous, I've been on Octrotide injections monthly since April 2018, a month after my first surgery...

https://connect.mayoclinic.org/comment/1208675/

Discussion: Clay colored bowels & diarrhea side effects with Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

My husband was diagnosed with GI tract stage 4 Neuroendocrine carcinoid tumor March,2022. He had surgery...

https://connect.mayoclinic.org/comment/1048670/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Comment

I’ve been receiving Lanreotide and now Octreotide injections for several years. Levels of pain and potential...

https://connect.mayoclinic.org/comment/881564/

Discussion: Advice for making monthly injections more tolerable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

Comment

I want to report in on my current situation. My GP referred me to a local...

https://connect.mayoclinic.org/comment/808662/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Comment

I also concur with all of the above responses; I’m on year 3… Mine started as...

https://connect.mayoclinic.org/comment/1369496/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2025

Comment

@panorman3 , I, too, have an inoperable tumor. It’s in my stomach and was found 7...

https://connect.mayoclinic.org/comment/1260726/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2025

Comment

I also have insulinomas. . . Diagnosed originally in 2015 with 2 tumors in the pancreas,...

https://connect.mayoclinic.org/comment/867769/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

Comment

Hi Neuroendocrine Group, I am Neuroendocrine Breast Cancer (rare) with mets in liver and bones. It...

https://connect.mayoclinic.org/comment/766898/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Comment

just facts here and you will have to decide for yourself--- and this was ten years...

https://connect.mayoclinic.org/comment/1030398/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024