Neuroendocrine Tumors (NETs) Support Group

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Comment

I am aware. My husband died from pancreatic cancer (adenocarcinoma) the aggressive pdac . Our son...

https://connect.mayoclinic.org/comment/1381475/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2025

Comment

Hello @tjstaufr and welcome to the NETs support group on Mayo Connect. In another post, I...

https://connect.mayoclinic.org/comment/1366135/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 8, 2025

Comment

You should ask your doctor first to test your Serotonin levels when they do your 28...

https://connect.mayoclinic.org/comment/1357948/

Discussion: Should NET w/liver met patient stop rx that has Seratonin?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2025

Comment

Hey all. My husband was diagnosed with NET that metastasized to liver 5 years ago. Since...

https://connect.mayoclinic.org/comment/1356472/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2025

Comment

I thought enucleation referred to eye surgery. The terms I heard for pancreatic surgery were distal...

https://connect.mayoclinic.org/comment/1344388/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2025

Comment

Actually he had already had his pancreatic primary removed by a net specialist surgeon at Stanford....

https://connect.mayoclinic.org/comment/1338518/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

Comment

Yes, we are seeing the only net specialist in town at UCSD. The Dr. said no...

https://connect.mayoclinic.org/comment/1336768/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2025

Comment

Hi @jayace2430 I'm sorry to hear of your wife's diagnosis My husband was diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/1336410/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2025

Comment

Hello @susan481, On Connect, we have numerous discussions from members who have had treatment with PRRT....

https://connect.mayoclinic.org/comment/1328871/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

@susan481 Welcome to Mayo Connect. I have never heard the terms interval progression. Where did you...

https://connect.mayoclinic.org/comment/1326220/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

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