Neuroendocrine Tumors (NETs) Support Group

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Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents...

https://connect.mayoclinic.org/comment/1238487/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

Comment

just facts here and you will have to decide for yourself--- and this was ten years...

https://connect.mayoclinic.org/comment/1030398/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024

Comment

Hi, I was in middle of this and my msg just disappeared..lol but anyway, no my...

https://connect.mayoclinic.org/comment/1296038/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3, 2025

Comment

Hi! Thank you ❤️so much for all your reply’s. A lot of your questions and comments...

https://connect.mayoclinic.org/comment/1440546/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2025

Comment

@swede79: I am assuming you have been diagnosed with Neuroendocrine tumor (carcinoid) cancer. Lanreotide 120 mg...

https://connect.mayoclinic.org/comment/1252202/

Discussion: Is there a particular diet to have when starting Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 7, 2025

Comment

I am so sorry I didn't respond earlier as I have been away for the last...

https://connect.mayoclinic.org/comment/770234/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2022

Comment

My goodness this sounds miserable for you. My one suggestion would be read about Hyperparathyroidism, nothing...

https://connect.mayoclinic.org/comment/1073561/

Discussion: Lymphocytic Colitis, Diverticulosis, C deficile and a stage 1 NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2024

Comment

Husband 4.5 years post pancreatectomy, with excision of the duodenum, pylorus, spleen, gallbladder and also has...

https://connect.mayoclinic.org/comment/1072741/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Comment

Your situation is one we all face and I am constantly retooling my diet based on...

https://connect.mayoclinic.org/comment/1003829/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

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