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Discussions (47)
Comments (536)
Comment
I totally understand the desire for a conservative approach. While there is likely a primary somewhere,...
https://connect.mayoclinic.org/comment/1157998/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 16, 2024
Comment
Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...
https://connect.mayoclinic.org/comment/668825/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 7, 2022
Comment
Original site small intestine/appendix with first surgery in 2004 (they thought it was an appendicitis but...
https://connect.mayoclinic.org/comment/1233382/
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Discussion:
How does Alcohol use affect Liver NET?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 10 3:55am
Comment
Hello @ristene and welcome to Mayo Connect, I am sorry to hear of this rare diagnosis....
https://connect.mayoclinic.org/comment/244177/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2, 2019
Comment
Hello Lanamarie. I am not far from you in New London, MN. I was diagnosed with...
https://connect.mayoclinic.org/comment/1278916/
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Discussion:
Just diagnosed with PNET: Any thoughts on watch & wait approach?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 10 7:36pm
Comment
Hi @peggymariejackson as I mentioned in another one of your posts, I have lung NETs --...
https://connect.mayoclinic.org/comment/861009/
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Discussion:
Dying from car accident can cause death more so this cancer
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 17, 2023
Comment
To all, I finish my 12th chemo yesterday I think the dr wanted to keep going...
https://connect.mayoclinic.org/comment/807633/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 7, 2023
Comment
Good luck to your wife. I’ve had chemo too, but not the pill. Had injections every...
https://connect.mayoclinic.org/comment/810971/
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Discussion:
Scared - Suspected NET on tail of the pancreas
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2023
Comment
Hi I had an exceptional NET specialist who started me Lanreotide after 3 injections the side...
https://connect.mayoclinic.org/comment/847916/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 23, 2023
Comment
Bob, To provide some additional information. . . I have had 2 surgeries - a modified...
https://connect.mayoclinic.org/comment/806975/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2023
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