Neuroendocrine Tumors (NETs) Support Group

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Comment

I just told the nurse that gave me my octreotide shot this week that sometimes the...

https://connect.mayoclinic.org/comment/883399/

Discussion: Advice for making monthly injections more tolerable

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Hello @monkey5333 and welcome to the NETs discussion on Mayo Connect. Yes, I have had the...

https://connect.mayoclinic.org/comment/802775/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

@tgsenn70 Sure. But first, is your husband seeing a net specialist? Is the iv chemotherapy you...

https://connect.mayoclinic.org/comment/1404439/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2025

Comment

You definitely need to get a second opinion from a NETs specialist. Other types of lung...

https://connect.mayoclinic.org/comment/1242687/

Discussion: DIPNECH diagnosis. Has anyone had radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2025

Comment

Hello, I was diagnosed in March '22 with neuroendocrine atypical carcinoid cancer. I had a partial...

https://connect.mayoclinic.org/comment/805534/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2023

Comment

Hi Maria957, I have tried everything you can think of. A combination of Afinitor, Anastrozole, Xeloda...

https://connect.mayoclinic.org/comment/770105/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2022

Comment

@carver1164 I can feel your frustration with your words. I know how that feels. I was...

https://connect.mayoclinic.org/comment/1385938/

Discussion: I saw the surgeon. More confused than ever.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2025

Comment

Hi! I was recently… finally diagnosed with DIPNECH. I am 69 and probably have had this...

https://connect.mayoclinic.org/comment/1173598/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 14, 2024

Comment

Yes … 19 years since first diagnosis post-appendectomy (or what had been suspected as an appendicitis...

https://connect.mayoclinic.org/comment/820107/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 3, 2023

Comment

Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...

https://connect.mayoclinic.org/comment/851440/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

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