Neuroendocrine Tumors (NETs) Support Group

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Hi katballoo! I am so glad you will be going to Mayo in Rochester. You couldn’t...

https://connect.mayoclinic.org/comment/814408/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

Comment

I was put on Folfirinox chemo for 12 treatments every 2 weeks for 3 days. I...

https://connect.mayoclinic.org/comment/812054/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

Hi My sugars dropped to 37 last July when I passed out in my car....found the...

https://connect.mayoclinic.org/comment/811873/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Comment

I’m in the same boat. I had no symptoms. It started in my pancreas and spread...

https://connect.mayoclinic.org/comment/811233/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Comment

Get it removed asap. If it spreads your going to be in trouble. I have NET...

https://connect.mayoclinic.org/comment/810674/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Comment

Mark, I was diagnosed with NETs (grade 2/3, inoperable, incurable) in Jan 2020 at Mayo Rochester....

https://connect.mayoclinic.org/comment/807712/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Comment

@skkirby Hello Sherry, Sharing your experience here on Mayo Connect is encouraging for many who are...

https://connect.mayoclinic.org/comment/806376/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2023

Comment

Yes I am actually not at a clinic but a hospital. They have done a CT,...

https://connect.mayoclinic.org/comment/803331/

Discussion: Neuroendocrine tumor: What tests are used for diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2023

Comment

My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...

https://connect.mayoclinic.org/comment/802307/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Comment

My wife was diagnosed with NET in April 2022, with mass on tail of pancreas, and...

https://connect.mayoclinic.org/comment/797689/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2023

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