Support Groups

Neuroendocrine Tumors (NETs) Support Group

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583 total results
Discussion
Root canal without Epinephrine
Sorry I missed the group last night I so wanted to make it home from the dentist to discuss my situation I have a functioning...
Last active: Jul 8 7:22am
Discussion
PRRT treatment how does it work?
My husband has small bowel Neuroendocrine cancer that had metastasized to liver, lymph nodes,and bones he had surgery to remove primary tumor in small bowel,...
Last active: Jun 28, 2024
Discussion
Atypical carcinoid tumour of the lung
Hi, I live in part of the U.k. and had an op to remove an atypical carcinoid tumour from my inferior lobe at the end...
Last active: Apr 7, 2024
Discussion
My Husband was newly diagnosed with Carcinoid Cancer
My husband was diagnosed with carcinoid on 1/18/17. He had surgery on 2/3/17 to remove 18" of his ileum small intestine (36 small tumors were...
Last active: Aug 14, 2017
Discussion
New and concerned about my wife.
Hello all. I am new here and somewhat awkward as I was once a cancer patient and now my precious wife of 38 blessed years...
Last active: Mar 20 11:22am
Discussion
4 treatment options from my doctor, which one should I start with?
Here is the summary of my situation. I am 63 years man with a history of a chest mass in 2019 found to be a...
Last active: Feb 13 10:06pm
Discussion
Deciding on best procedure: Your thoughts?
I am going to have to seek a treatment; what do you suggest1tumor.I have a carcinoid tumor in the Centrist part of my body and...
Last active: May 19 2:02pm
Discussion
Everolimus for multiple Neuroendocrine tumors
I’ve been on this Mayo support group for a couple of years, but was always the one answering questions and making suggestions, not the one...
Last active: Aug 15, 2024
Discussion
Update: Lutethera treatment is over
Hi all, just wanted to check in with an update for everyone. Sorry it has taken some time, treatments, vacation, holidays and sickness have all...
Last active: May 14 12:11pm
Discussion
PNET on tail of pancreas with numerous bilobar hepatic metastases
After eight years (yes, eight years/ ten doctors) of chasing ULQ abdominal and back pain, I recently received a diagnosis of an ill-defined, well differentiated,...
Last active: Jan 28, 2024