Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

455 total results

Comment

I've had six surgeries for chronic small bowels obstructions since 2002. My intestinal tract shuts down...

https://connect.mayoclinic.org/comment/1479961/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Jan 11 5:36pm

Comment

Thanks very much for your reply. I have been waiting for the Mayo Clinic E-Consult so...

https://connect.mayoclinic.org/comment/1161723/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

Comment

Hello Jennifer, Bunky2078 laid it out almost exactly what I experienced. Distal pancreatectomy/splenectomy was just under...

https://connect.mayoclinic.org/comment/1448970/

Discussion: What is your Recovery Advice for a Distal Pancreatectomy?

Support Group: Pancreatic Cancer

Posted: Nov 28, 2025

Comment

I guess I should introduce myself before I answer people. I am a NET patient at...

https://connect.mayoclinic.org/comment/134540/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

Comment

I am so relieved to hear those two concerns have been resolved in your favor. Thank...

https://connect.mayoclinic.org/comment/163993/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Comment

Hi, I was diagnosed 8-7-23 with NET of the small intestines. I am a Grade 2...

https://connect.mayoclinic.org/comment/1015199/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2024

Comment

We did find this out that there is extra help for Medicare patients with the drug...

https://connect.mayoclinic.org/comment/1135041/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Comment

I was diagnosed with net cancer December 2020. Originated in small intestines and spread to liver....

https://connect.mayoclinic.org/comment/856717/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines...

https://connect.mayoclinic.org/comment/959684/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2023

Comment

I was suffering before my surgery with 3 small bowel constrictions due to Nets. I had...

https://connect.mayoclinic.org/comment/1216360/

Discussion: Carotid body tumor encasing completely carotid artery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

1
…
37
38
39
40

Digestive Health

Follow

19874

52 minutes ago

Follow

8962

1 hour ago

Visiting Mayo Clinic

Follow

7415

2 hours ago

Cancer: Managing Symptoms

Follow

6235

3 hours ago

Pancreatic Cancer

Follow

3904

3 hours ago