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583 total results
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Discussions (47)
Comments (536)
Comment
Hi Mike @mikecincy Sorry to hear you've joined the NETs club. It looks like you're doing...
https://connect.mayoclinic.org/comment/885633/
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Discussion:
NET found by colonoscopy. What to expect and how should I approach
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 26, 2023
Comment
In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...
https://connect.mayoclinic.org/comment/896094/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 15, 2023
Comment
I have not had chemo - PRRT (Peptide Receptor Radionuclide Therapy) is NOT chemo. It is...
https://connect.mayoclinic.org/comment/799329/
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Discussion:
Neuroendocrine tumor: What tests are used for diagnosis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 20, 2023
Comment
Hi Teresa. Just found this site and saw your post. I had the Ga68 scan at...
https://connect.mayoclinic.org/comment/107243/
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Discussion:
Ga-68 for detecting NETs
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 1, 2017
Comment
Yes I have had one discovered about two years ago with a heart MRI. It was...
https://connect.mayoclinic.org/comment/907604/
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Discussion:
Has anyone had NETs metastasized to heart?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 4, 2023
Comment
Hi I am so sorry to hear of your situation I had primary NET liver cancer...
https://connect.mayoclinic.org/comment/776351/
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Discussion:
Does sandostatin work?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 22, 2022
Comment
Was it a PET Dotatate scan he had? That's the one my Doc uses to find...
https://connect.mayoclinic.org/comment/1248357/
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Discussion:
New Diagnosis: husband's labs are all indicating NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 1 10:54pm
Comment
Might I suggest you get a 2nd opinion? It's just a thought. Also, possibly speak with...
https://connect.mayoclinic.org/comment/1072193/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 21, 2024
Comment
Hello, My name is Ristene and I was diagnosed with a glomus jugular paraganglioma on 1/10/19....
https://connect.mayoclinic.org/comment/244178/
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Discussion:
Paraganglioma / Carotid Body Tumor Question
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2, 2019
Comment
@splendrous, thanks for sharing your source of the second paragraph. I appreciate that you shared your...
https://connect.mayoclinic.org/comment/1346810/
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Discussion:
Any one with Neuroendocrine tumors getting the shot once a month?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 12 6:55pm
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