Neuroendocrine Tumors (NETs) Support Group

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Comment

Hello @marilyn2525 I so appreciate the information you provided. I have had three surgeries for NETs...

https://connect.mayoclinic.org/comment/134694/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2019

Comment

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)...

https://connect.mayoclinic.org/comment/1074467/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

Comment

Hello @cangre82 and welcome to Mayo Connect. I can understand your concern and your need for...

https://connect.mayoclinic.org/comment/1073905/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2024

Comment

@gig666 We can't say what treatment to do, but what we all can say on this...

https://connect.mayoclinic.org/comment/1054639/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

I went to MAYO in Rochester last week for a second opinion. The NET specialist and...

https://connect.mayoclinic.org/comment/1054396/

Discussion: Large Appendiceal NET, well-differentiated

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Comment

I also had similar results on CAP/TEM with my pancreatic NET with liver metastasis. Every thing...

https://connect.mayoclinic.org/comment/1038336/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2024

Comment

Hello jolo24. Thanks for reaching back. Im still pretty overwhelmed with so many new terms and...

https://connect.mayoclinic.org/comment/1036215/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 18, 2024

Comment

Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...

https://connect.mayoclinic.org/comment/1031029/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2024

Comment

Thank you for your response and guidance. My Doctor is in that list. He is an...

https://connect.mayoclinic.org/comment/1010146/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2024

Comment

Are you all at Mayo Clinic in Jax or Rochester if you don’t mind me asking...

https://connect.mayoclinic.org/comment/998503/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2024

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