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Discussions (47)
Comments (536)
Comment
I’m glad your allergies have improved and general wellness. I did allergy testing about 25 years...
https://connect.mayoclinic.org/comment/1330239/
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Discussion:
DIPNCEH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 18 10:15pm
Comment
Hi! I was recently… finally diagnosed with DIPNECH. I am 69 and probably have had this...
https://connect.mayoclinic.org/comment/1173598/
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Discussion:
New DIPNECH diagnosis, need advice on doctors
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 14, 2024
Comment
Hello, I was diagnosed in March '22 with neuroendocrine atypical carcinoid cancer. I had a partial...
https://connect.mayoclinic.org/comment/805534/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 2, 2023
Comment
Hi Maria957, I have tried everything you can think of. A combination of Afinitor, Anastrozole, Xeloda...
https://connect.mayoclinic.org/comment/770105/
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Discussion:
NETs: Anyone has Liver debulking for liver metastasis?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 6, 2022
Comment
Yes … 19 years since first diagnosis post-appendectomy (or what had been suspected as an appendicitis...
https://connect.mayoclinic.org/comment/820107/
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Discussion:
Long Time Survivor With Concerns re Metastasis
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 3, 2023
Comment
We seem to go from home few weeks then back to hospital. He just got out...
https://connect.mayoclinic.org/comment/1377017/
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Discussion:
Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen
Support Group:
Neuroendocrine Tumors (NETs)
Posted: 3 days ago
Comment
My son finished his 4th treatment of PRRT in February and had his petscan Dotatate taken...
https://connect.mayoclinic.org/comment/1056415/
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Discussion:
Questions Regarding Results after PRRT Treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2024
Comment
@mlbschuler Great news that you were happy with your visit with Dr. Ramirez and he is...
https://connect.mayoclinic.org/comment/1024996/
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Discussion:
Neuroendocrine cells in Breast and Lungs DIPNECH
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 29, 2024
Comment
I had a follow up with the Oncologist earlier this week. I inquired about a NET...
https://connect.mayoclinic.org/comment/835888/
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Discussion:
Newly diagnosed-Primary Malignant Neuroendocrine of Lung
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 1, 2023
Comment
Insulinoma causes excessive release of insulin and results in hypoglycemia. My husband is not a candidate...
https://connect.mayoclinic.org/comment/897218/
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Discussion:
NET - Insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 17, 2023
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