Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

676 total results

Comment

@nannybb My breast cancer is your most common hormone driven kind. Even though stage 1, I...

https://connect.mayoclinic.org/comment/1432536/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 6, 2025

Comment

My origin was small bowel & 4 lymph nodes resected in 2022. In 2024 it reoccurred...

https://connect.mayoclinic.org/comment/1384654/

Discussion: Experience w liver metastasis & new small tumor peritoneal cavity

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

Comment

davisnrn: I read your post I am going to be 70 and I am in my...

https://connect.mayoclinic.org/comment/1017749/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2024

Comment

I'm a NETs patient on monthly Lanreotide. I just had a tooth pulled using Lidocaine at...

https://connect.mayoclinic.org/comment/1322071/

Discussion: Root canal without Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2025

Comment

The dentist called my oncologist and he said absolutely no epinephrine so I need to have...

https://connect.mayoclinic.org/comment/1322979/

Discussion: Root canal without Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2025

Comment

Sophiarose, the radiologist and doctors want most of the Octreotide or Lanriotide out of your system...

https://connect.mayoclinic.org/comment/1169494/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

Hi @grec I shared my details earlier in the thread if you want to scroll back....

https://connect.mayoclinic.org/comment/1048486/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Comment

Sorry to hear of all your challenges. It's difficult when they are coming from all directions....

https://connect.mayoclinic.org/comment/1228165/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

Comment

@ekri I'm so sorry to hear about your sister. Cancer and cancer treatment are so challenging....

https://connect.mayoclinic.org/comment/1025598/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2024

Comment

Do get a second opinion but be sure they are a NET specialist. My husband was...

https://connect.mayoclinic.org/comment/996445/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 13, 2024

Visiting Mayo Clinic

Follow

6661

3 minutes ago

Follow

1853

30 minutes ago

Melanoma & Skin Cancer

Follow

991

42 minutes ago

Follow

8057

1 hour ago

Pancreatic Cancer

Follow

3499

3 hours ago