Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

508 total results

Comment

My husband was diagnosed with stage four grade 2 NET in October 2022. He had a...

https://connect.mayoclinic.org/comment/1213981/

Discussion: Anyone had a large NET in the liver? What treatment did you have?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 15, 2025

Comment

In my opinion, you have the right attitude! Someone somewhere has it worse than we do....

https://connect.mayoclinic.org/comment/1206709/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2025

Comment

I just checked and UCSD has a NETs program with a full multidisciplinary team of specialists....

https://connect.mayoclinic.org/comment/1204945/

Discussion: Hello. I am new here. My husband was recently diagnosed with NETs.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2025

Comment

3 χρόνια έχω κάνει εγχείριση ΝΕΤ στο στομάχι. Είναι ανενεργός. Εχει παρουσιαστεί τώρα και στο πάγκρεας,αλλά...

https://connect.mayoclinic.org/comment/1178280/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2024

Comment

Thanks for your comment. I have since learned that non functioning (no symptom) tumors do not...

https://connect.mayoclinic.org/comment/1166857/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

Comment

@cewald62, my wife has NET in the liver still after finding the primary tumor on the...

https://connect.mayoclinic.org/comment/1146827/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2024

Comment

I’m so sorry you’re going through this. I know it’s scary and there’s so much to...

https://connect.mayoclinic.org/comment/1112706/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

Comment

I have a Neuro Endocrine Tumor of the Pancreas. 9-6-2019 second CT Scan SHOWED NEGATIVE GROWTH...

https://connect.mayoclinic.org/comment/275675/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2019

Comment

I last saw Dr. Kasi my net specialist in Feb. just before he left Mayo and...

https://connect.mayoclinic.org/comment/176697/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2019

Comment

Hello @marilyn2525 I so appreciate the information you provided. I have had three surgeries for NETs...

https://connect.mayoclinic.org/comment/134694/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2019

1
…
33
34
35
36
37
…
44

Follow

8530

7 minutes ago

Pancreatic Cancer

Follow

3725

7 minutes ago

Follow

10467

7 minutes ago

Melanoma & Skin Cancer

Follow

1239

19 minutes ago

Follow

1013

58 minutes ago