Neuroendocrine Tumors (NETs) Support Group

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Comment

I am so relieved to hear those two concerns have been resolved in your favor. Thank...

https://connect.mayoclinic.org/comment/163993/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Dec 4, 2019

Comment

I have been on sandostatin since sept 2014. After extensive surgery to remove carcinoids on large...

https://connect.mayoclinic.org/comment/137527/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2017

Comment

Good morning, I was diagnoses with Stage 4 NET's in December 2022 primary in small intestines...

https://connect.mayoclinic.org/comment/1476398/

Discussion: What does the future look like for a stage 4 NET patient?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7 7:59am

Comment

I have short gut syndrome. I only have 2ft of my small intestines. I had a...

https://connect.mayoclinic.org/comment/1428178/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 1, 2025

Comment

@fraaseo I live in Far North Qld Australia. I found out in 2021 I had net...

https://connect.mayoclinic.org/comment/1402161/

Discussion: My carcinoid tumor is inoperable: What are the best ways to control?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 26, 2025

Comment

Thank you for your information of how your PNET was handled. While I am sure surgery...

https://connect.mayoclinic.org/comment/1354581/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2025

Comment

Hi, I have had a resection in my small bowel 12/24. It took about a year...

https://connect.mayoclinic.org/comment/1271695/

Discussion: Small Intestine Resection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2025

Comment

I also have Grade 2, KI - 67 of 6.6% Stage 4, metastasized from small intestines...

https://connect.mayoclinic.org/comment/1261758/

Discussion: Liver function (birirubin, globulin, glucose, iron) and Octreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 19, 2025

Comment

That’s great you’re doing better, I had a lot of symptoms bloating, severe fatigue and stomach...

https://connect.mayoclinic.org/comment/1216857/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from...

https://connect.mayoclinic.org/comment/1161712/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

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