Neuroendocrine Tumors (NETs) Support Group

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Comment

Actually he had already had his pancreatic primary removed by a net specialist surgeon at Stanford....

https://connect.mayoclinic.org/comment/1338518/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

Comment

Yes, we are seeing the only net specialist in town at UCSD. The Dr. said no...

https://connect.mayoclinic.org/comment/1336768/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28, 2025

Comment

Hi @jayace2430 I'm sorry to hear of your wife's diagnosis My husband was diagnosed with pancreatic...

https://connect.mayoclinic.org/comment/1336410/

Discussion: (Spouse)Supports Stage 2

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2025

Comment

Hello @susan481, On Connect, we have numerous discussions from members who have had treatment with PRRT....

https://connect.mayoclinic.org/comment/1328871/

Discussion: PRRT and Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

@susan481 Welcome to Mayo Connect. I have never heard the terms interval progression. Where did you...

https://connect.mayoclinic.org/comment/1326220/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2025

Comment

Just here to share my story and hopefully help others. I was diagnosed at 57 with...

https://connect.mayoclinic.org/comment/1312320/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Comment

After googling it, it means the tracer or dye they gave you was lighting up something...

https://connect.mayoclinic.org/comment/1301485/

Discussion: Focal SUV levels ga68pet/ct… what does that mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2025

Comment

@lanamarie: You must be feeling really overwhelmed by wanting a path to resolution of your health...

https://connect.mayoclinic.org/comment/1277660/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2025

Comment

Now I am back with some updates. Since Lutathera treatment in 2023, I had 15 fractions...

https://connect.mayoclinic.org/comment/1226272/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2025

Comment

I had most my pancreas removed as well as spleen and gallbladder in 2020. In 2023...

https://connect.mayoclinic.org/comment/1217431/

Discussion: PNET removed 2 years ago: Can it come back at another site?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2025

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