Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @mayberries, welcome. I see that you have recently been diagnosed with pancreatic NET and you...

https://connect.mayoclinic.org/comment/804962/

Discussion: What's the best way to detect liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Comment

Welcome @bridget1980, I hope you saw the helpful and supportive replies you got from members like...

https://connect.mayoclinic.org/comment/801570/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

Comment

Outlaw, my wife has almost the same area of pancreas with NET’s mass diagnosed last April....

https://connect.mayoclinic.org/comment/783580/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 11, 2022

Comment

Hi @sturns, welcome to the NETs group. Is that a picture of you surfing? The abbreviation...

https://connect.mayoclinic.org/comment/717233/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Jun 13, 2022

Comment

Hello @laurell410, I'd like to add my welcome to you as you have joined the NETs...

https://connect.mayoclinic.org/comment/694028/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2022

Comment

Here is an article that I thought you might interesting, about a youngster with NETs who...

https://connect.mayoclinic.org/comment/134557/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2021

Comment

I ve had awareness of my PANCREATIC NET for a year plus. Rare, with established core...

https://connect.mayoclinic.org/comment/257018/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2020

Comment

@tjstaufr The PET Dotatatescan confirmed that I had 2 NETS in my pancreas, if NETS is...

https://connect.mayoclinic.org/comment/1512000/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 11:24am

Comment

@ceefer Hi, how are you? I'm sorry to hear what you're going through. It might be...

https://connect.mayoclinic.org/comment/1498901/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 4:11pm

Comment

@jessie1990 Keep crying then. You probably need it. I was diagnosed with stage 4 pancreatic NETs...

https://connect.mayoclinic.org/comment/1454550/

Discussion: Benign carcinoid tumor in bronchi tube

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2025

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