Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

508 total results

Comment

The best way is to listen to your oncologist and if you go for surgery- find...

https://connect.mayoclinic.org/comment/1003402/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

Hi @pamsbass, I had a Pyloric preserving pancreaticoduodenectomy (modified Whipple) liver resection and liver ablation in...

https://connect.mayoclinic.org/comment/1001236/

Discussion: Need more information on NET in head of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2024

Comment

Thank god for our multi discipline team of NET specialists, surgeons, chemo specialists, etc. they have...

https://connect.mayoclinic.org/comment/985488/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Comment

I think it really depends on how much of the pancreas needs to be removed. You...

https://connect.mayoclinic.org/comment/960273/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2023

Comment

I had Whipple and liver ablation, liver resection in 2019 primary NET was on the head...

https://connect.mayoclinic.org/comment/958846/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2023

Comment

I have stage 4 NET pancreatitis to liver cancer. Also had trouble with sugar levels dropping...

https://connect.mayoclinic.org/comment/934290/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Comment

It great your doctor reviewed the options you have, but the doctor wants you to choose?...

https://connect.mayoclinic.org/comment/899570/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

Comment

I had 100 tumors in my stomach. Many were polyps, however 5 were biopsied and all...

https://connect.mayoclinic.org/comment/896529/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 16, 2023

Comment

I agree with other comments you need to respectfully push your care team for possible treatments...

https://connect.mayoclinic.org/comment/889727/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2023

Comment

@ Turkey - huge. 20×16×12 cm. It had grown over part of my stomach, vascularized. So...

https://connect.mayoclinic.org/comment/881954/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

1
…
29
30
31
32
33
…
44

Follow

1013

9 minutes ago

Follow

8530

29 minutes ago

Melanoma & Skin Cancer

Follow

1239

50 minutes ago

Cancer: Managing Symptoms

Follow

5939

53 minutes ago

Pancreatic Cancer

Follow

3725

1 hour ago