Neuroendocrine Tumors (NETs) Support Group

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Comment

I know after the 2 treatments the team wanted to see if the PRRT treatments were...

https://connect.mayoclinic.org/comment/1469987/

Discussion: What is the Imaging Protocol Following Completion of PRRT Therapy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2025

Comment

i Have a carcinoid tumor small in the middle of my intestines and is inoperable i...

https://connect.mayoclinic.org/comment/1384070/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

Comment

Thank you for an insight to your journey.. mine is 2 spots in my intestines. ....

https://connect.mayoclinic.org/comment/1363375/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2025

Comment

My husband has been getting Lanreotide injections for 2 1/2 years after a)having surgery to remove...

https://connect.mayoclinic.org/comment/1332000/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2025

Comment

Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents...

https://connect.mayoclinic.org/comment/1238487/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

Comment

I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in...

https://connect.mayoclinic.org/comment/1216428/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

I also had small in intestine had surgery soon after finding out they took about a...

https://connect.mayoclinic.org/comment/1208440/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

Good morning, the small intestines was the primary source of my NET’s before metastasizing to my...

https://connect.mayoclinic.org/comment/1204419/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2025

Comment

We did find this out that there is extra help for Medicare patients with the drug...

https://connect.mayoclinic.org/comment/1135041/

Discussion: Short acting Ocreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2024

Comment

I guess I should introduce myself before I answer people. I am a NET patient at...

https://connect.mayoclinic.org/comment/134540/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

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