Neuroendocrine Tumors (NETs) Support Group

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Comment

I would like to invite everyone who has been involved with NETs to a virtual support...

https://connect.mayoclinic.org/comment/1166585/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 2, 2024

Comment

After many years of being misdiagnosed I became a patient at Mayo in Dec. 2017. I...

https://connect.mayoclinic.org/comment/176687/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2019

Comment

@junebug15 Thanks for sharing your history with carcinoids. Yes, like you, my NET was found "incidentally"...

https://connect.mayoclinic.org/comment/107246/

Discussion: Ga-68 for detecting NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2017

Comment

You have been dealing with it longer than my wife has and seem to have a...

https://connect.mayoclinic.org/comment/867263/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

Hi @katiekee, I added your question to the Neuroendocrine Tumors support group as well (https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/). I'm...

https://connect.mayoclinic.org/comment/1075140/

Discussion: MEN 1 Pancreatic cyst size increased

Support Group: Pancreatic Cancer

Posted: May 26, 2024

Comment

Hi . I have small bowel net and did start on creon due to pale stools...

https://connect.mayoclinic.org/comment/1050394/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2024

Comment

Hi @rginvictus, I add my welcome along with @stevm and @jolo24. I added your question to...

https://connect.mayoclinic.org/comment/1035921/

Discussion: Newly Diagnosed Pancreatic NET awaiting Distal Pancrectomy

Support Group: Pancreatic Cancer

Posted: Mar 18, 2024

Comment

I have a primary pancreatic net with metastasis to the liver functioning gastrinomas. I was first...

https://connect.mayoclinic.org/comment/1035496/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2024

Comment

Given how “Rare” Nets are there are no surgeons here who are specialists. I have an...

https://connect.mayoclinic.org/comment/1034297/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2024

Comment

@ant12 One more thing, lanreotide/octreotide injections can really help with carcinoid syndrome -- the flushing, diarrhea,...

https://connect.mayoclinic.org/comment/1033639/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 14, 2024

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