Neuroendocrine Tumors (NETs) Support Group

I was diagnosed in Feb. 2022 with a NET tumor in the small intestine that was determined to be stage 4. I just returned for...

I am currently living in Panama, without insurance and have been diagnosed with NETS, biopsied and they believe its origin is the small intestine ....

Had what I thought was a bad stomach bug, turned out to be a neoindicrine tumor blocking my small intestine with lymph node involvement. Had...

Because of diarrhea issues an endoscopy was preformed and the doctor found something suspicious in the small intestine. Biopsy results said it was indeed a...

1. Net's found in 2017 - pancreas / small intestine co- primaries 2. Lanreotide until 2023 when progression was identified including bone metastasis. 3. 4...

First diagnosed in 2015 and had stomach pain, vomiting ,and two weeks of diarrhea.After catscan,a blockage wasfound at the junction of large and small intestine....

Just to recap, biopsy showed neuroendrocrine tumor. Had follow up MRI. Mass wasn’t identified. Surgeon said it would be better for GI to try and...

I have been receiving treatment for carcinoid syndrome for 3 years. It is believed tumor is in small intestine. Doctors waffle back and forth about...

I have reoccurrence of two tumors, one in liver and one near small intestine, site of previous surgery. I’m currently in third round of cap/temo....

Hi! I have had hypothyroidism for many years. Now after my NET surgery on 8-7-23 in which the surgeon removed a large tumor in my...