Neuroendocrine Tumors (NETs) Support Group

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Comment

Thanks for sharing. Do I understand that when you were diagnosed two years ago, you had...

https://connect.mayoclinic.org/comment/1274822/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 11:37am

Comment

I have metastasis liver net with unknown primary they believe it is in my gut I...

https://connect.mayoclinic.org/comment/922592/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

Comment

I had Octreotide in the hospital for almost two weeks. And it sounds like I maybe...

https://connect.mayoclinic.org/comment/1340935/

Discussion: 1/2 Pancreas, 1 lymph node involved. What treatment would be likely?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4 10:40am

Comment

Hello, amk1122. I have just finished my 3rd round of PRRT. I've also lost weight (20lbs)....

https://connect.mayoclinic.org/comment/951690/

Discussion: PRRT for NETs: Questioning whether I should continue or not

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Comment

Hello @avawein I appreciate knowing the date of your surgery. I will be thinking (and praying)...

https://connect.mayoclinic.org/comment/636588/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

Comment

Hello @trixie1313, I know that we have posted before and yes NETs in the breast are...

https://connect.mayoclinic.org/comment/297054/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2020

Comment

@bnjncrew, I'd like to add my welcome. I augmented the title of your discussion to reflect...

https://connect.mayoclinic.org/comment/831812/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

My husband has one tumor on his pancreas and “innumerable” lesions in his liver. They started...

https://connect.mayoclinic.org/comment/831010/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

Welcome, @edotagle57. As you've learned, VIPomas are rare functioning neuroendocrine tumors that secrete vasoactive intestinal polypeptide...

https://connect.mayoclinic.org/comment/762902/

Discussion: NET-VIPoma pancreatic tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Comment

Hi! I’m so sorry to hear about your husband’s diagnosis. I believe in asking as many...

https://connect.mayoclinic.org/comment/1201611/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1 9:10am

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