Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

409 total results

Comment

Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....

https://connect.mayoclinic.org/comment/770718/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

Comment

@mgb20, I totally agree with @phyllisden ! It was probably 15 years before I was finally...

https://connect.mayoclinic.org/comment/831438/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Comment

Hi Teresa: I would be glad to share my journey with you and your followers. In...

https://connect.mayoclinic.org/comment/107245/

Discussion: Ga-68 for detecting NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2017

Comment

I was diagnosed with NET's in my Liver back in December 2022, started Lanreodide for a...

https://connect.mayoclinic.org/comment/1539459/

Discussion: Does anyone have neuroendocrine small cell carcinoma of the liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31 9:33am

Comment

@kevinmonroemi thank you for sharing. I have functional Gastrinoma PNET at head of pancreas removed in...

https://connect.mayoclinic.org/comment/1542508/

Discussion: Started PRRT treatment: Anyone experience tumor markers increasing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4 8:51am

Comment

@tgsenn70 I am new here; I hope this reply works. We went with Y90 procedure because...

https://connect.mayoclinic.org/comment/1529993/

Discussion: Liver NETs: Anyone has extreme swelling in feet and ankles?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 2:00pm

Comment

Hi! Thank you ❤️so much for all your reply’s. A lot of your questions and comments...

https://connect.mayoclinic.org/comment/1440546/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2025

Comment

How was the surgery? I’m looking to get it soon. Nets in small intestines.

https://connect.mayoclinic.org/comment/1309889/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2025

Comment

I was suffering before my surgery with 3 small bowel constrictions due to Nets. I had...

https://connect.mayoclinic.org/comment/1216360/

Discussion: Carotid body tumor encasing completely carotid artery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET....

https://connect.mayoclinic.org/comment/1165976/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024