Neuroendocrine Tumors (NETs) Support Group

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Comment

So relieved to find people with this frustrating disease process. I was beginning to think I...

https://connect.mayoclinic.org/comment/135496/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2017

Comment

Patrick, I would like to know more about your regimen and diet. I was diagnosed this...

https://connect.mayoclinic.org/comment/776233/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Comment

I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed...

https://connect.mayoclinic.org/comment/1110182/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Comment

My husband had to have an open surgery because his 3mm tumor was deep in his...

https://connect.mayoclinic.org/comment/1003834/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

Your situation is one we all face and I am constantly retooling my diet based on...

https://connect.mayoclinic.org/comment/1003829/

Discussion: NET in illeum, surgery or proper nutrition?!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2024

Comment

My spouse was diagnosed with GEP-NET and "heavy load" of tumors on the the small intestines...

https://connect.mayoclinic.org/comment/959684/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 5, 2023

Comment

May I ask how they found the carcinoid NET in your small intestines?

https://connect.mayoclinic.org/comment/884124/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Comment

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

Comment

I was diagnosed with net cancer December 2020. Originated in small intestines and spread to liver....

https://connect.mayoclinic.org/comment/856717/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Comment

Yes I was diagnosed with net in May of last year in my small intestines

https://connect.mayoclinic.org/comment/835232/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2023

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