Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @pattirushing, octreotide and microwave ablation are the only two treatments I've had for my typical...

https://connect.mayoclinic.org/comment/845209/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

He had his first 6 days ago. Has had some stomach upset on and off and...

https://connect.mayoclinic.org/comment/991577/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2024

Comment

I have just been diagnosed with NET tumors in my abdomen and am starting with MRI's,...

https://connect.mayoclinic.org/comment/1454524/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2025

Comment

I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...

https://connect.mayoclinic.org/comment/901156/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

Comment

I get octreotide injections along with exgeva monthly and yes, I’m pretty wiped out for about...

https://connect.mayoclinic.org/comment/1111700/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2024

Comment

I had surgery for the very same thing n 2022. Dr removed the obstruction & 1...

https://connect.mayoclinic.org/comment/1350314/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2025

Comment

Good morning. I see Dr. Jason Starr at Mayo Jacksonville, Fl. In the last two years,...

https://connect.mayoclinic.org/comment/271257/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 28, 2019

Comment

Hello stevesrenberg31, I have been taking octreotide for 8mo. It feels like it works intermittently as...

https://connect.mayoclinic.org/comment/1023345/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2024

Comment

Was diagnosed with stage IV with primary in Duednum and 4 tumors in liver. Been on...

https://connect.mayoclinic.org/comment/1365332/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2025

Comment

It is so good to hear from you, @sophiarose. I'm glad to hear of the success...

https://connect.mayoclinic.org/comment/1312870/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

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