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583 total results
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Discussions (47)
Comments (536)
Comment
Slow growing is good! How large is the largest tumor? It makes me wonder if you...
https://connect.mayoclinic.org/comment/1081836/
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Discussion:
Multiple bilateral neuroendocrine lung tumors grade 1
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 6, 2024
Comment
I feel for you with the difficult to control blood sugars. For a time I was...
https://connect.mayoclinic.org/comment/838750/
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Discussion:
Ways to control hypoglycemia caused by insulinoma in pancreas?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 6, 2023
Comment
I had 3 NET tumors in stomach (mayor curve). The treatment was resection and after that...
https://connect.mayoclinic.org/comment/802563/
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Discussion:
Neck and face red flushing
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 27, 2023
Comment
Started with two rounds of CAPTEM. Didn’t work at all. Then did 10 rounds of FOLFIRINOX,...
https://connect.mayoclinic.org/comment/796241/
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Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 13, 2023
Comment
We sound very similar. Small bowel primary with mets to liver. Started octreotide after bowel resection....
https://connect.mayoclinic.org/comment/1218810/
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Discussion:
Clay colored bowels & diarrhea side effects with Octreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 22 9:23am
Comment
@tammyv615 Good plan. I had my tumor ablation at UCLA. They have a NETs multidisciplinary team...
https://connect.mayoclinic.org/comment/1071228/
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Discussion:
Anyone living long-term with DIPNECH on lungs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 19, 2024
Comment
I had major flushing and diarrhea I was put in Lanreotide which made those symptoms worst...
https://connect.mayoclinic.org/comment/753332/
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Discussion:
My first sudden facial flush since NETs surgery
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 24, 2022
Comment
I’ve gone through four embolization procedures on my liver and I’m down to my last one...
https://connect.mayoclinic.org/comment/1047618/
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Discussion:
Spreading NET
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 8, 2024
Comment
Hoping your wife is continuing to do well. My husband has struggled a bit coming back...
https://connect.mayoclinic.org/comment/1125881/
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Discussion:
PRRT side effects and results
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Aug 18, 2024
Comment
We are hopeful that the treatment will help reduce the size of the tumors again. These...
https://connect.mayoclinic.org/comment/887598/
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Discussion:
Looking for information on CAPTEM treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 30, 2023
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