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355 total results
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Discussions (43)
Comments (312)
Comment
I was diagnosed with stage 4 NET’s December 2022, started in small intestines and metastasized to...
https://connect.mayoclinic.org/comment/901156/
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Discussion:
Should I want more treatment after pancreatic nets with lymph nodes?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 24, 2023
Comment
I found out 3 years ago that I have net cancer. Originated in small intestines and...
https://connect.mayoclinic.org/comment/848467/
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Discussion:
Differentiating Carcinoid syndrome from MCAS?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 24, 2023
Comment
Yesterday I saw an oncologist here in Tucson. His thought was that the primary tumor is...
https://connect.mayoclinic.org/comment/176713/
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Discussion:
Anyone treated for NETs at Mayo Clinic in Jacksonville, FL
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 28, 2019
Comment
I was diagnosed in March 2018 with NETs in multiple locations after having a blockage in...
https://connect.mayoclinic.org/comment/807089/
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Discussion:
Interested in hearing people's experiences with PRRT
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 6, 2023
Comment
Hi I feel every bite of your trails I traveled almost the same road , misdiagnosed...
https://connect.mayoclinic.org/comment/792778/
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Discussion:
Frustrated with the medical establishment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 5, 2023
Comment
Hi I was diagnosed with NET in my small intestines just like you in 2011 I...
https://connect.mayoclinic.org/comment/752699/
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Discussion:
Newly diagnosed with NET in liver
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 22, 2022
Comment
We did find this out that there is extra help for Medicare patients with the drug...
https://connect.mayoclinic.org/comment/1135041/
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Discussion:
Short acting Ocreotide
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 2, 2024
Comment
Husband 4.5 years post pancreatectomy, with excision of the duodenum, pylorus, spleen, gallbladder and also has...
https://connect.mayoclinic.org/comment/1072741/
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Discussion:
Weight Loss after Whipple: What strategies helped you?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 22, 2024
Comment
I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...
https://connect.mayoclinic.org/comment/1035643/
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Discussion:
What questions should I ask oncologist tumor types and chemo treatment
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 18, 2024
Comment
just facts here and you will have to decide for yourself--- and this was ten years...
https://connect.mayoclinic.org/comment/1030398/
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Discussion:
High risk surgery. Is it worth it?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 9, 2024
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