Neuroendocrine Tumors (NETs) Support Group

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Comment

I get the lanreotide injection every three weeks. I have GPNET grade 2 resection from small...

https://connect.mayoclinic.org/comment/1280086/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2025

Comment

Nana120, welcome to the Mayo Connect online support group for Neuroendocrine tumor patients. I hope you’ll...

https://connect.mayoclinic.org/comment/898735/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Comment

Welcome Iniemczura to the Mayo online support group for neuroendocrine tumors. I hope you find this...

https://connect.mayoclinic.org/comment/894050/

Discussion: More info on gastric NET w/liver mets and progression of symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

Comment

ricki8, I haven't been part of this conversation, but decided to join tonight. I went to...

https://connect.mayoclinic.org/comment/1009722/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2024

Comment

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Comment

@helloitsme, Something you said in your initial post just struck a chord with me, and that...

https://connect.mayoclinic.org/comment/854505/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...

https://connect.mayoclinic.org/comment/851440/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...

https://connect.mayoclinic.org/comment/809267/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Comment

I had emergency surgery this past September after a Laparoscopic removal of a 6.5 m. cyst...

https://connect.mayoclinic.org/comment/1438921/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 14, 2025

Comment

Pippa05, I am so very sorry to hear about your struggles. And I appreciate and can...

https://connect.mayoclinic.org/comment/897706/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17, 2023

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