Neuroendocrine Tumors (NETs) Support Group

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Comment

Jan, sorry to hear about all of your health challenges. Sometimes DIPNECH is misdiagnosed as asthma...

https://connect.mayoclinic.org/comment/1222295/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 26 1:18pm

Comment

My husband is also a patient at Mayo Phoenix. Have they discussed captem with you? Everolimus...

https://connect.mayoclinic.org/comment/1122814/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2024

Comment

@pjsheridan2022 I appreciate the added information. Have you mentioned the weight loss to the doctor who...

https://connect.mayoclinic.org/comment/720229/

Discussion: New to NETs: Found lesions on liver during a health check

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2022

Comment

PRRT Update: Today I got the absolute best news😁 Had my PRRT follow-up appt with the...

https://connect.mayoclinic.org/comment/1374576/

Discussion: PRRT Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: 6 days ago

Comment

I was diagnosed with Metastatic P-NET VIPoma in 2019. I had surgery to remove a part...

https://connect.mayoclinic.org/comment/791950/

Discussion: NET-VIPoma pancreatic tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2023

Comment

So have you considered octreotide injections for the DIPNECH? My allergy issues are respiratory. I was...

https://connect.mayoclinic.org/comment/1205603/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 8:44pm

Comment

Having a high count on Chromogranin is indicative of a Neuroendocrine tumor, regardless of whether or...

https://connect.mayoclinic.org/comment/1232800/

Discussion: Cromogranina A

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 8:49am

Comment

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 3:52pm

Comment

Hello @wordnoid I get the octreotide shots every 28 days I am a NED but I...

https://connect.mayoclinic.org/comment/134518/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2017

Comment

I've had NETs of the small intestine (Mesentery) for many years. Let me offer this hypothetical:...

https://connect.mayoclinic.org/comment/1348269/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14 4:35pm

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