Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi there, my hubs had had NETS (neoendrocrine tumors) since 2019. I saw the above post...

https://connect.mayoclinic.org/comment/1231187/

Discussion: Lanreotide Question: Why start before the next scan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21, 2024

Comment

3 yrs ago a NET removed from small intestine during endoscopy - since then all labs...

https://connect.mayoclinic.org/comment/1012292/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2024

Comment

Hi @allan2022, welcome. I moved your message to the Neuroendocrine Tumors (NETs) Support Group here https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/...

https://connect.mayoclinic.org/comment/810465/

Discussion: Searching for info re NETs and heart issues

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Comment

@splendrous: I was in this situation last June (2024) - small intestine/stomach primary with liver mets…...

https://connect.mayoclinic.org/comment/1364348/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2025

Comment

mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...

https://connect.mayoclinic.org/comment/830736/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2023

Comment

I wish I had an answer for you, but I doubt that even your doctor can...

https://connect.mayoclinic.org/comment/867084/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

Hi, I am a 65-year-old woman. I was having these horrible stomachaches. I finally went to...

https://connect.mayoclinic.org/comment/1434058/

Discussion: New NET in liver and small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2025

Comment

@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...

https://connect.mayoclinic.org/comment/1251442/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2025

Comment

@rose2525: I feel your frustration! NETS primary tumors tend to be illusive and difficult to discover....

https://connect.mayoclinic.org/comment/1435655/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2025

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