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Discussions (47)
Comments (536)
Comment
Hi @ahtaylor -- I love your motto! I have always loved the "Never Give Up" poster...
https://connect.mayoclinic.org/comment/867775/
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Discussion:
Life expectancy with NETs and lifetyle as it progresses
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 27, 2023
Comment
Hi, My husband experiences the same symptoms after his Octreotide injection. Bad diaree, fatigue, fevers, vomiting,...
https://connect.mayoclinic.org/comment/848947/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Apr 25, 2023
Comment
He Is fine with the Octreotide. He has been on it since June 2022. We have...
https://connect.mayoclinic.org/comment/831928/
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Discussion:
Neuroendocrine Insulinoma: Is treatment different for this type?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
Hi Sandi You are a blessed person 19 year. Wow!!!! I was on lanreotide and had...
https://connect.mayoclinic.org/comment/746905/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 8, 2022
Comment
Greetings! Thanks for the post. I am happy to connect with you. I have been dealing...
https://connect.mayoclinic.org/comment/799602/
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Discussion:
Pancreatic NETs: Looking to connect with anyone with insulinoma
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jan 21, 2023
Comment
I have been heavily engaged in NETs since my wife was diagnosed at Mayo Rochester in...
https://connect.mayoclinic.org/comment/275681/
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Discussion:
What topics do you want for the Neuroendocrine Support Group?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 9, 2019
Comment
This is my opinion with the facts for myself. I started octreotide twelve and a half...
https://connect.mayoclinic.org/comment/1162233/
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Discussion:
NET on liver: Question about treatments when no symptoms
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 24, 2024
Comment
I was diagnosed 5 years ago Have multiple surgeries procedures and treatments done My primary had...
https://connect.mayoclinic.org/comment/1266481/
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Discussion:
Diagnosis Frustrated: How you were diagnosed with NETs?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25 11:21am
Comment
I was told when we destroyed my largest carcinoid tumor 2.6 cm with microwave ablation that...
https://connect.mayoclinic.org/comment/1108812/
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Discussion:
DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jul 20, 2024
Comment
I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....
https://connect.mayoclinic.org/comment/870969/
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Discussion:
Neuroendocrine tumor and carcinoid tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2, 2023
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