Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

676 total results

Comment

Hello @sandy23, The person who recently mentioned bone METs is @jenntx10. I hope that she will...

https://connect.mayoclinic.org/comment/775596/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Comment

I too have NET alongside my colon. So far the doctor is not suggesting any surgery....

https://connect.mayoclinic.org/comment/748637/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Comment

I've been told by Oncologist they are working on oral versions of Octreotide and Lanreotide. But...

https://connect.mayoclinic.org/comment/1334042/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2025

Comment

Do you have a NETS oncology surgeon specialist & a regular oncologist? Also curious why you...

https://connect.mayoclinic.org/comment/1312510/

Discussion: Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2025

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

The lanreotide and octreotide injections can be a little painful during the injection but side effectss...

https://connect.mayoclinic.org/comment/1439051/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2025

Comment

I went to 2 local oncologists, 1 at Penn Medicine and 1 at Dana Farber. The...

https://connect.mayoclinic.org/comment/1216861/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2025

Comment

I have breast cancer as well as lung NETs and DIPNECH. My breast cancer is unrelated;...

https://connect.mayoclinic.org/comment/1206124/

Discussion: Concerns after lobectomy for carcinoid tumor in lung

Support Group: Lung Cancer

Posted: Jan 7, 2025

Comment

Hi @nana120 That's such great news to be stable!!! Sounds like the lanreotide is doing its...

https://connect.mayoclinic.org/comment/937205/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

I have similar calcified mesenteric masses. I chose not to do "exploratory" surgery but am taking...

https://connect.mayoclinic.org/comment/1433055/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2025

Follow

9912

10 minutes ago

Follow

8068

29 minutes ago

Follow

1050

1 hour ago

Digestive Health

Follow

18083

2 hours ago

Visiting Mayo Clinic

Follow

6669

3 hours ago