Neuroendocrine Tumors (NETs) Support Group

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To answer your question, yes if it spreads (metastasized) I have it in my liver, mesentery,...

https://connect.mayoclinic.org/comment/1238682/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2025

Comment

I also have NET’s in my liver, I am on monthly octreotide injections. I have not...

https://connect.mayoclinic.org/comment/883630/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23, 2023

Comment

Here is another post about it. - Has anyone out there tried Histotripsy for tumors in...

https://connect.mayoclinic.org/comment/1192134/

Discussion: I recently learned of histotripsy treatment for metastatic NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 17, 2024

Comment

I have stage 4 NET pancreatitis to liver cancer. Also had trouble with sugar levels dropping...

https://connect.mayoclinic.org/comment/934290/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2023

Comment

Interesting. I too am at Mayo JAX. I wonder why you are being treated for your...

https://connect.mayoclinic.org/comment/831958/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

Dr was unable to get a clear view with the CT so he ordered a GA68...

https://connect.mayoclinic.org/comment/1308050/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2025

Comment

@tomrennie Thank you for sharing. What stage Pnets to tbe liver or grade did you have?...

https://connect.mayoclinic.org/comment/1251236/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2025

Comment

Hi @ahtaylor Good to hear that your liver panels have been normal, that seems to be...

https://connect.mayoclinic.org/comment/829501/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

Comment

@worriedlovingwife When they say stage 4 terminal, does that definitely mean there is no hope of...

https://connect.mayoclinic.org/comment/292371/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2020

Comment

Yeah I had a second opinion at MD Anderson in Houston and they said I wouldn’t...

https://connect.mayoclinic.org/comment/1338817/

Discussion: Liver transplant and Neuroendocrine Carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2025

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