Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @pattirushing, octreotide and microwave ablation are the only two treatments I've had for my typical...

https://connect.mayoclinic.org/comment/845209/

Discussion: Anyone had surgery to remove typical carcinoids of the lung?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

Comment

@californiazebra looks like you are in CA? Who are your specialists? I am recently diagnosed with...

https://connect.mayoclinic.org/comment/1526053/

Discussion: What is the surveillance protocol for typical pulmonary NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 12:27pm

Comment

I also have the same condition . I am 72 , diagnosed 8 years ago ....

https://connect.mayoclinic.org/comment/1142709/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Comment

I am coughing up blood tinged phlegm every day. This is how it was found. At...

https://connect.mayoclinic.org/comment/1048206/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2024

Comment

I was diagnosed last year with a lung tumor and had my left lower lobe of...

https://connect.mayoclinic.org/comment/1314408/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2025

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