Neuroendocrine Tumors (NETs) Support Group

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Comment

In 2021 I went to the emergency room with severe stomach pain. Thank-God the emergency room...

https://connect.mayoclinic.org/comment/1427968/

Discussion: NETs with Liver metastasis: starting lanreotide injections

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2025

Comment

@mmar2025: My PRRT was because the latest MRI showed 40% tumor progression from the 2021 diagnosis...

https://connect.mayoclinic.org/comment/1502103/

Discussion: Neuroendocrine Pancreatic Tumors with KIT Missense Variant Exon 10 GOF

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9 8:46pm

Comment

Have your doctors discussed having Lutathera treatment? My husband has Stage 4 NET that started in...

https://connect.mayoclinic.org/comment/1505529/

Discussion: What helps with muscle aches and weakness after Lanreotide injections?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 10:49am

Comment

@splendtous: I hope you are getting helpful information to form your decision on NET cancer tumor...

https://connect.mayoclinic.org/comment/1365392/

Discussion: Interested in your experience with treatments of PRRT vs surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 7, 2025

Comment

Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...

https://connect.mayoclinic.org/comment/1292381/

Discussion: PanNET and CgA results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2025

Comment

Digestion issues are different for everyone. I had about a yard of small intestine removed and...

https://connect.mayoclinic.org/comment/879118/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15, 2023

Comment

@nana120: I am sorry you are experiencing new tumors. Are you seeing a NET Oncologist with...

https://connect.mayoclinic.org/comment/1360091/

Discussion: Anyone on cabozantinib after Y90

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 30, 2025

Comment

Hello @vickihorseman and welcome to Mayo Connect. From your post, it looks like you have had...

https://connect.mayoclinic.org/comment/1171737/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

Comment

@bluebell, So sorry to hear you’re having struggles with your diet post surgery, but I certainly...

https://connect.mayoclinic.org/comment/943818/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2023

Comment

I was diagnosed in 1993 by a doctor who performed a colonoscopy after heavy rectal bleeding....

https://connect.mayoclinic.org/comment/771371/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2022

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