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Discussions (32)
Comments (234)
Comment
Hi, I was diagnosed 8-7-23 with NET of the small intestines. I am a Grade 2...
https://connect.mayoclinic.org/comment/1015199/
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Discussion:
Anyone have a neuroendocrine tumor in small intestine?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Feb 13, 2024
Comment
I was diagnosed a year ago with a NET on the valve that connects the large...
https://connect.mayoclinic.org/comment/986403/
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Discussion:
Laparoscopic Possible Open Surgery Resection - Small Bowel NETS
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Dec 25, 2023
Comment
I was diagnosed with Neuroendocrine tumors in my liver and small intestines back in December 2022....
https://connect.mayoclinic.org/comment/870969/
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Discussion:
Neuroendocrine tumor and carcinoid tumor
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Jun 2, 2023
Comment
I have an unknown primary They think in my small intestines but it isn’t showing on...
https://connect.mayoclinic.org/comment/862966/
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Discussion:
Anyone else get bloating and abdominal pain from NETS or Lanreotide?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: May 19, 2023
Comment
I’m being treated at Mayo Jax. Was diagnosed with NETs (Carcinoid Syndrome)December 2022, started in the...
https://connect.mayoclinic.org/comment/831689/
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Discussion:
Anyone treated for NETs at Mayo Clinic in Jacksonville, FL
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 25, 2023
Comment
Hi - I hope your meeting with the specialists was good. Would you mind telling me...
https://connect.mayoclinic.org/comment/820013/
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Discussion:
Lost with no confirmation of NETs origin: Innumerable liver lesions
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 2, 2023
Comment
Hi, I am living in Adelaide. South Australia. I went through chemo with non Hodgkins lymphoma...
https://connect.mayoclinic.org/comment/819077/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Mar 1, 2023
Comment
I am so sorry I didn't respond earlier as I have been away for the last...
https://connect.mayoclinic.org/comment/770234/
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Discussion:
Welcome to the NETs Group! Come say hi.
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Nov 7, 2022
Comment
I had it ordered after multiple ER visits, oily diarrhea, yellow diarrhea, green diarrhea and ultimately...
https://connect.mayoclinic.org/comment/756770/
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Discussion:
Is high CA. 19.9 a good indicator of malignancy?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Oct 3, 2022
Comment
All I can offer is hope that the blockage problem will sort itself out soon. After...
https://connect.mayoclinic.org/comment/755129/
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Discussion:
Intestinal Blockage with NETs: Anyone else?
Support Group:
Neuroendocrine Tumors (NETs)
Posted: Sep 29, 2022
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