Neuroendocrine Tumors (NETs) Support Group

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Comment

@sophiarose I’ve been taking octreotide injections for lung NETs and DIPNECH for 3.5 years and it...

https://connect.mayoclinic.org/comment/1181820/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 29, 2024

Comment

You bring some interesting questions. The answers to those questions are not easy. We all seem...

https://connect.mayoclinic.org/comment/1169691/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 7, 2024

Comment

Hello @wordnoid. Welcome, I'm glad to see that you have joined Mayo Connect. Thanks for your...

https://connect.mayoclinic.org/comment/127207/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2016

Comment

Have had some minor bouts of nausea other than that I have been feeling ok. I...

https://connect.mayoclinic.org/comment/257026/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2020

Comment

Just had my follow up MRI after 6 months, my serotonin levels were at 60, after...

https://connect.mayoclinic.org/comment/885750/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

My brother's medical oncologist did not put him on Octreotide (that is what his office uses)...

https://connect.mayoclinic.org/comment/877307/

Discussion: Is it common to start on Lanreotide with no known tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Comment

I am currently having SBRT to radiate 2 carcinoid lung tumors that are 1.5 cm. They...

https://connect.mayoclinic.org/comment/838553/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Comment

Hi Bob and Welcome! I read your other post regarding your insulinoma metastasis to the liver....

https://connect.mayoclinic.org/comment/806558/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2023

Comment

In January I was diagnosed with NETs in my stomach. My GI doctor said I had...

https://connect.mayoclinic.org/comment/835868/

Discussion: Anyone have a stomach NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

Comment

I take Octreotide injection SQ three times per day. It has a similar side effect profile...

https://connect.mayoclinic.org/comment/1022152/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2024

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