Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

2,455 total results

Comment

I am feeling pretty well thank you. Came back from a 3 mile hike with my...

https://connect.mayoclinic.org/comment/881898/

Discussion: My Sister and Best Friend

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Comment

I’m well. Thank you for checking. I just had a scan in Rochester that they said...

https://connect.mayoclinic.org/comment/879762/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Comment

I had my first visit today with one of the smartest, intuitive doctors I’ve ever been...

https://connect.mayoclinic.org/comment/873214/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Comment

My son in law had is spleen removed at a very young age due to an...

https://connect.mayoclinic.org/comment/857839/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

Comment

What a remarkable story of your journey with paraganglioma, @patriciagsr. You have certainly been proactive in...

https://connect.mayoclinic.org/comment/857217/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2023

Comment

Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...

https://connect.mayoclinic.org/comment/851440/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...

https://connect.mayoclinic.org/comment/851198/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Comment

Hello, I had a 6.8cm pheochromocytoma and had a right adrenalectomy March 17th. My scans do...

https://connect.mayoclinic.org/comment/846343/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

Comment

It was very helpful and encouraging to read your comments . I have not met or...

https://connect.mayoclinic.org/comment/845625/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Comment

A gentle reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/#ch-tab-navigation In particular I'd like to point out guidelines...

https://connect.mayoclinic.org/comment/838930/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Digestive Health

Follow

17618

10 minutes ago

Follow

9599

41 minutes ago

Melanoma & Skin Cancer

Follow

865

41 minutes ago

Cancer: Managing Symptoms

Follow

5358

1 hour ago

Pancreatic Cancer

Follow

3404

2 hours ago