Neuroendocrine Tumors (NETs) Support Group

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Hello @gg66 and welcome to Mayo Connect. I completely understand your wanting to chat with others...

https://connect.mayoclinic.org/comment/1189781/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2024

Comment

@netpatient Hello Shakirat and to all members. I missed this live presentation as well, so I'm...

https://connect.mayoclinic.org/comment/682973/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2022

Comment

I agree, having a positive attitude & outlook on life is key! I try to live...

https://connect.mayoclinic.org/comment/1275181/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2025

Comment

Why did you have a CT/Pet in the first place? Did or do you have symptoms?...

https://connect.mayoclinic.org/comment/1264349/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2025

Comment

My tumor was about the size of a twinkie with arms constricting my small bowel in...

https://connect.mayoclinic.org/comment/1307762/

Discussion: What is the best treatment for carcinoid tumor in mesentery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19, 2025

Comment

Hi Brittany I am 6 years out of a modified Whipple taking the remaining pancreas and...

https://connect.mayoclinic.org/comment/1394309/

Discussion: Symptomatic after two years out from Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2025

Comment

@jsudjian He said the doctor also suspected the rash was due to arthritis, but his labs...

https://connect.mayoclinic.org/comment/1401078/

Discussion: So, now just still waiting, losing my mind being worried and new quest

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2025

Comment

Yes I actually saw a net oncologist but I live in Canada so sometimes feel because...

https://connect.mayoclinic.org/comment/1351841/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2025

Comment

I live in NC... HUMID in the summer.. like BAD HUMID.. the rest of the year.....

https://connect.mayoclinic.org/comment/1352236/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2025

Comment

Hi , I have the exact same diagnosis and situation as you do. I have tumorlets...

https://connect.mayoclinic.org/comment/1397213/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2025

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