Neuroendocrine Tumors (NETs) Support Group

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Comment

@cordelia73 - my tumors have been stable, no new growth for the last 2 yrs. There...

https://connect.mayoclinic.org/comment/1287223/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2025

Comment

I have this condition also. Are you having symptoms? How was this discovered? It seems everybody's...

https://connect.mayoclinic.org/comment/1203938/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2025

Comment

I throw blankets and tops on and off. I live by myself so when I am...

https://connect.mayoclinic.org/comment/1203844/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 4, 2025

Comment

Thank you for the helpful links! We’d love a second opinion and all the support we...

https://connect.mayoclinic.org/comment/1197999/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

Comment

I'd like to expand on info from @lindabees: Depending on the state and county in which...

https://connect.mayoclinic.org/comment/1184968/

Discussion: Disability and Medicare: Has anyone qualified for Medicare under 65?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Comment

Hello @wilhelm and welcome to Mayo Connect. I appreciate your thoughtful comments about this rare disorder...

https://connect.mayoclinic.org/comment/1165843/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2024

Comment

@eewtao- You have been through a lot. And you are absolutely correct. Recurrence is a different...

https://connect.mayoclinic.org/comment/232713/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Comment

Hi, Thank you so much for this long share. I really appreciate it. Your husband struck...

https://connect.mayoclinic.org/comment/1231602/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2025

Comment

"The Drs assured me I had no cancer and thought that CgA decrease was insignificant and...

https://connect.mayoclinic.org/comment/1312066/

Discussion: Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24, 2025

Comment

Thanks for writing back! Next week I get my first scan since I was diagnosed and...

https://connect.mayoclinic.org/comment/1321134/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2025

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