Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

356 total results

Comment

Thank you Colleen. I’m a newbie and appreciate your patience. After almost a year of struggle...

https://connect.mayoclinic.org/comment/669817/

Discussion: Questions about carcinoid treatment and diet

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

Comment

mgb20, Reading your post was like reading my story - 5 years ago (3/18) I, too,...

https://connect.mayoclinic.org/comment/830736/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2023

Comment

I get the lanreotide injection every three weeks. I have GPNET grade 2 resection from small...

https://connect.mayoclinic.org/comment/1280086/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 11:16am

Comment

I wish I had an answer for you, but I doubt that even your doctor can...

https://connect.mayoclinic.org/comment/867084/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Comment

@jutebox42 & @hopeful33250 You asked about my Neuroendocrine Cancer diagnosis - dx October 2021 biopsy in...

https://connect.mayoclinic.org/comment/1251442/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6 1:53am

Comment

Welcome Iniemczura to the Mayo online support group for neuroendocrine tumors. I hope you find this...

https://connect.mayoclinic.org/comment/894050/

Discussion: More info on gastric NET w/liver mets and progression of symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11, 2023

Comment

Nana120, welcome to the Mayo Connect online support group for Neuroendocrine tumor patients. I hope you’ll...

https://connect.mayoclinic.org/comment/898735/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

Comment

@helloitsme, Something you said in your initial post just struck a chord with me, and that...

https://connect.mayoclinic.org/comment/854505/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Comment

Re: "come say hi". Hi, I am new here. I had an appendiceal NET removed in...

https://connect.mayoclinic.org/comment/800545/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2023

Comment

ricki8, I haven't been part of this conversation, but decided to join tonight. I went to...

https://connect.mayoclinic.org/comment/1009722/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 4, 2024

Follow

1664

9 minutes ago

Follow

7256

53 minutes ago

Digestive Health

Follow

16560

1 hour ago

Adolescent & Young Adult (AYA) Cancer

Follow

776

7 hours ago

Visiting Mayo Clinic

Follow

6030

13 hours ago