Neuroendocrine Tumors (NETs) Support Group

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Comment

I had my right colon removed and small intestine removed 6 weeks ago due to chrons...

https://connect.mayoclinic.org/comment/1436511/

Discussion: How do I eat after digestive tract surgery?

Support Group: Digestive Health

Posted: Nov 12, 2025

Comment

Thank you for reaching out. I am a patient of Dr. Jason Starr at Mayo in...

https://connect.mayoclinic.org/comment/831954/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Comment

@tgsenn70: I am also NET small intestine primary with liver metastases, diagnosed 10/2022 with 28 day...

https://connect.mayoclinic.org/comment/1282563/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2025

Comment

I understand how you feel ! I’ve done a lot of research , well mostly google...

https://connect.mayoclinic.org/comment/1237685/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2025

Comment

Dougt - There is a good website you might checked out www.netrf.org (Neuroendocrine Tumor Research Foundation)...

https://connect.mayoclinic.org/comment/1143245/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 17, 2024

Comment

Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures...

https://connect.mayoclinic.org/comment/834012/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Comment

The protocol used by most oncologists is based on the National Comprehensive Cancer Network's recommendations, and...

https://connect.mayoclinic.org/comment/802916/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

@blee123: As you are aware, NET patients do not react the same to treatments; but my...

https://connect.mayoclinic.org/comment/1384449/

Discussion: Questions for surgeon-considerations choosing PRRT or surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2025

Comment

Hello @bluebelle and welcome to the NETs support group at Mayo Connect. I wanted to respond...

https://connect.mayoclinic.org/comment/943270/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Comment

My primary was a tumor wrapped around my small intestine, discovered in 2007. I have been...

https://connect.mayoclinic.org/comment/898391/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023