Neuroendocrine Tumors (NETs) Support Group

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Comment

Hi @sderose, thanks for the like and hug. It wasn’t that I was trying to avoid...

https://connect.mayoclinic.org/comment/817332/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

Comment

@jsudjian I don't see any mention of you having NETs so it doesn't seem like it...

https://connect.mayoclinic.org/comment/1378264/

Discussion: Worried about carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 24, 2025

Comment

I take the octreotide shot every 28 days. It has made such a difference in my...

https://connect.mayoclinic.org/comment/1329029/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2025

Comment

Sherry, your experience sounds exactly like mine. I have been getting injections of octreotide every 4...

https://connect.mayoclinic.org/comment/1268153/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2025

Comment

I have only had the every 28 day injections I did lanreotide for 3 months (3...

https://connect.mayoclinic.org/comment/820017/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Comment

I get Sandostatin LAR injection every 4 weeks and neuroendocrine specialist advices against Pet GA 68...

https://connect.mayoclinic.org/comment/794761/

Discussion: PET Ga-68 Scan Scheduling vs. Most Recent Lanreotide Injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2023

Comment

@kevinmonroemi So glad you posted to the site I live in New York and I am...

https://connect.mayoclinic.org/comment/1454934/

Discussion: Cost of treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2025

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272924/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2, 2025

Comment

I'm glad that you found Dr. Liu's podcast helpful,@mikhailtsapenko. So, if I understand correctly, your oncologist...

https://connect.mayoclinic.org/comment/1194093/

Discussion: Still have symptoms after surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2024

Comment

I tried the protein shakes when I was recovering from my resection surgery. They contain a...

https://connect.mayoclinic.org/comment/919104/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2023

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