Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

583 total results

Comment

Hi @nana120 That's such great news to be stable!!! Sounds like the lanreotide is doing its...

https://connect.mayoclinic.org/comment/937205/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2023

Comment

The protocol used by most oncologists is based on the National Comprehensive Cancer Network's recommendations, and...

https://connect.mayoclinic.org/comment/802916/

Discussion: What's your NETs treatment and surveillance protocol?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2023

Comment

The same week I met with the Dr at Dana Farber the first of September 2022...

https://connect.mayoclinic.org/comment/885611/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Comment

Hello @sandy23, The person who recently mentioned bone METs is @jenntx10. I hope that she will...

https://connect.mayoclinic.org/comment/775596/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Comment

I too have NET alongside my colon. So far the doctor is not suggesting any surgery....

https://connect.mayoclinic.org/comment/748637/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Comment

Hello @sophiarose I am sorry to hear of your calcified mass following the injection. I have...

https://connect.mayoclinic.org/comment/739345/

Discussion: Lanreotide injection

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19, 2022

Comment

My husband has a neuroendocrine tumor in the small intestine found by accident as they were...

https://connect.mayoclinic.org/comment/1272927/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 2 8:35pm

Comment

Do you have a NETS oncology surgeon specialist & a regular oncologist? Also curious why you...

https://connect.mayoclinic.org/comment/1312510/

Discussion: Small Bowel Neuroendocrine Cancer, Metastasis to Mesentery Recurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 11:38am

Comment

I’ve been taking octreotide injections for DIPNECH and lung NETs for 4 years. No GI issues...

https://connect.mayoclinic.org/comment/1199060/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

Comment

@mdmarquardt the octreotide really took my appetite away the first year or so. I'm still not...

https://connect.mayoclinic.org/comment/937832/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 28, 2023

Digestive Health

Follow

16062

2 seconds ago

Follow

7007

1 hour ago

Melanoma & Skin Cancer

Follow

491

1 hour ago

Cancer: Managing Symptoms

Follow

4806

1 hour ago

Follow

671

1 hour ago