Neuroendocrine Tumors (NETs) Support Group

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Comment

I have lung nets.... along with 1 Adenocarcinoma. The top right lobe and parts of the...

https://connect.mayoclinic.org/comment/1323823/

Discussion: Anyone have lung NETs lining your pleura?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2025

Comment

My tumors (lungs) were first noted in 2016 and as goes with NETS there is little...

https://connect.mayoclinic.org/comment/1318000/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2025

Comment

Seeing Oncologist on Tuesday CT showed a 10mm at my thyroid, First lung tumor removed (NET)...

https://connect.mayoclinic.org/comment/1316439/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2025

Comment

Hi, I'm new to the group but was reading about the NETs but I've never heard...

https://connect.mayoclinic.org/comment/1289033/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Comment

No I am not. My pathology after my lung surgery was sent to Mayo, and that...

https://connect.mayoclinic.org/comment/1288895/

Discussion: I am 75 and have carcinoid tumors NET in lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2025

Comment

Hello @katinka58, I'm sorry to hear the recent MRI showed more problems with your husband's lung....

https://connect.mayoclinic.org/comment/1269539/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2025

Comment

Okay. Please update us when you know more details. In the meantime, know that lung NETs...

https://connect.mayoclinic.org/comment/1263033/

Discussion: Neuroendocrine cell tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2025

Comment

@gig666, great question. @jlsgt is right that the term carcinoid is out of favor. Here's some...

https://connect.mayoclinic.org/comment/1235902/

Discussion: Carcinoid NET changed to carcinoma: What's the difference?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2025

Comment

Sorry to hear of all your challenges. It's difficult when they are coming from all directions....

https://connect.mayoclinic.org/comment/1228165/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

Comment

Is the endometrium cancer NETs? If not, I’m not sure how they would be related unless...

https://connect.mayoclinic.org/comment/1223490/

Discussion: Relationship between endometrium cancer and DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 28, 2025

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