Neuroendocrine Tumors (NETs) Support Group

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Thank you for all the information. I have nonfunctioning lung to liver Net just found out...

https://connect.mayoclinic.org/comment/671705/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2022

Comment

Hi, newly diagnosed NET in left lower lung. Going to see surgeon this coming week. Anyone...

https://connect.mayoclinic.org/comment/666911/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2022

Comment

I’d had GI issues for years, never mentioned it to doctors. I was diagnosed Lactose intolerance...

https://connect.mayoclinic.org/comment/303673/

Discussion: NETs, Toilet Paper, a rant and a little humor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2020

Comment

I joined the NET support group because my father had an intestinal carcinoid tumor; my half...

https://connect.mayoclinic.org/comment/275684/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2019

Comment

Hello Group...Just remembered I was a member here. And yes still chugging along with 2 whoppers....

https://connect.mayoclinic.org/comment/134280/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2019

Comment

Hello @lrittmiller and welcome to the NETs support group on Mayo Connect. We have many members...

https://connect.mayoclinic.org/comment/1107836/

Discussion: DIPNECH (diffuse idiopathic pulmonary neuroendocrine cell hyperplasia)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2024

Comment

I coughed constantly for 30 years due to lung NETs and DIPNECH but octreotide injections for...

https://connect.mayoclinic.org/comment/1067737/

Discussion: Describe your recovery from lung NET surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 14, 2024

Comment

I did 5 year watch on my lung nodules. then accidentally with through CAT scan two...

https://connect.mayoclinic.org/comment/1057169/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2024

Comment

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2024

Comment

@dipnech67 Robert Ramirez MD at Vanderbilt in Nashville is a NETS specialist who talks about DIPNECH...

https://connect.mayoclinic.org/comment/1054381/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

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