Neuroendocrine Tumors (NETs) Support Group

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Comment

@debf I appreciate the information and I'm so glad that your son is living the life...

https://connect.mayoclinic.org/comment/152972/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

Comment

@sebley12 I have had three carcinoid lesions removed since 2003, however, I have never experienced carcinoid...

https://connect.mayoclinic.org/comment/110436/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2016

Comment

Ralph: If you live in Michigan you might already be aware of a Carcinoid Support Group. ...

https://connect.mayoclinic.org/comment/101982/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

Comment

thank-you i have been looking for someone that specializes in carcinoid tumors in the michigan area...

https://connect.mayoclinic.org/comment/101979/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Comment

I was diagnosed December 28th, 2024. I was having chronic pain on my left side. Went...

https://connect.mayoclinic.org/comment/1227882/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2, 2025

Comment

Hello, I am feeling fine except for a 20 lb weight gain that seemed to happen...

https://connect.mayoclinic.org/comment/1242864/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2025

Comment

Me. 2.5 years since diagnosis and not only surviving, I am thriving. I am but a...

https://connect.mayoclinic.org/comment/1225015/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29, 2025

Comment

Hello @lynn99 and welcome to Mayo Connect. When you say, "It's pretty scary" most of us...

https://connect.mayoclinic.org/comment/998813/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Melanoma & Skin Cancer

Posted: Jan 17, 2024

Comment

@cindypat1 The life expectancy data is flawed. It includes the very old, those diagnosed very late...

https://connect.mayoclinic.org/comment/1208295/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2025

Comment

I 100% agree with others, 2nd opinion with a NET specialist, and even better would be...

https://connect.mayoclinic.org/comment/1294485/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2025

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